Team driven by a mate’s cure quest

Albany Extra - - Extra News - Sjanna San­dalova

An in­spired fam­ily from Tam­bellup will jet off to Vic­to­ria to join the fight against mo­tor neu­rone dis­ease — the mys­te­ri­ous ill­ness that takes the lives of at least two Aus­tralians a day.

From Oc­to­ber 12 to 15, Team Tam­bellup, made up of Tom Tay­lor and par­ents Cam and Sarah, will par­tic­i­pate in Dani­her’s Drive — a four-day road trip to raise aware­ness and funds to find a cure for mo­tor neu­rone dis­ease.

MND is a pro­gres­sive ter­mi­nal dis­ease that at­tacks the ner­vous sys­tem, mak­ing sim­ple tasks such as eat­ing, walk­ing, speak­ing and breath­ing a daily chal­lenge.

With still no ef­fec­tive treat­ment, let alone a cure, or­gan­i­sa­tions such as Fight MND bring peo­ple to­gether to make a dif­fer­ence.

For­mer AFL player and coach Neale Dani­her was di­ag­nosed with MND in 2013. He is now vice-chair­man of Fight MND and the man be­hind Dani­her’s Drive.

Like many oth­ers, Tom and his fam­ily were in­spired by Neale to be in­volved and raise much-needed funds to aid MND re­search.

“Neale Dani­her is a fam­ily friend, and we are so happy we can con­trib­ute in a small way and urge oth­ers to also get on board and help,” Tom said.

“He is suf­fer­ing from such a dog of a dis­ease but has man­aged to make a pos­i­tive out­come know­ing that there is no cure for MND, by hav­ing such a self­less and go-get at­ti­tude whereby he has used his pub­lic pro­file to raise aware­ness and raise mil­lions of dol­lars for re­search.

“Peo­ple like Neale are rare. He could have just fo­cused on him­self and done noth­ing; how­ever, he has gone the other way and in­spired so many peo­ple while bat­tling the cruel dis­ease head-on.”

Tom said he was proud to be rep­re­sent­ing Tam­bellup as a place that sup­ports the need for MND re­search, as well as be­ing the home­town of AFL leg­end Jeff Farmer, who was coached by Mr Dani­her at Mel­bourne Foot­ball Club.

“We want other teams in­volved in the Dani­her’s Drive car rally and other peo­ple in coun­try Vic­to­ria to be aware of Team Tam­bellup and its lo­ca­tion in WA, and that it is the home of Jeff Farmer, AKA ‘the Wiz’.”

This isn’t the first time the Great South­ern re­gion was put on the map for its gen­eros­ity and sup­port in erad­i­cat­ing the ag­gres­sive dis­ease.

Box­wood Hill Foot­ball Club hosted its Big Freeze event in June, where they raised $45,000, all put to­wards MND re­search.

Mr Dani­her said MND af­fected peo­ple all over Aus­tralia, so it was fan­tas­tic to see Team Tam­bellup be­come in­volved.

“The Tay­lors are good friends of mine and it’s great they are sup­port­ing the drive,” he said.

“The drive is a cel­e­bra­tion of nine months of fundrais­ing, we’ve got 100 cars this year so it’s go­ing to be our big­gest one yet.”

This is the third year for Dani­her’s Drive and with about 360 par­tic­i­pants they are hop­ing to raise $2 mil­lion.

Tom Tay­lor, left, with Jeff Farmer, right, with Mr Farmer’s for­mer AFL coach Neale Dani­her.

Newspapers in English

Newspapers from Australia

© PressReader. All rights reserved.