Baby Olena’s brave battle for healthy life
LITTLE Olena Daley has been fighting every single day from the moment she was born.
Olena was born with lumbar syndrome, described as a rare condition that appears as a hemangioma, or multiple hemangiomas, on the lower body, in association with other congenital anomalies.
In Olena’s case, she was born with a tethered spinal cord as well as some of her internal organs being “jumbled”.
Since birth, Olena has had to undergo five surgeries.
“Olena needed to have surgery to detach her spinal cord, which has allowed her to walk, move and function like a normal kid,” Olena’s mum Fiona Daley said.
“If she didn’t have that surgery, it is possible none of that would have been possible for her.
“She also had to undergo surgery to fix her internal organs to where they should be.”
Mrs Daley said Olena was now doing really well.
“She is hitting all her milestones,” she said.
“She is walking, talking and is just a happy little girl.
“We don’t have to have any more surgeries for her at this point, but she will have to see the surgeons for the rest of her life, so that could change.”
She said the family was forever grateful to the surgeons and Ronald McDonald House for their amazing work and support.
“We are super grateful her surgeons wanted to do all her surgeries early in life so she wouldn’t remember any of them,” she said.
“Ronald McDonald House has been so great. I don’t want to think about where we’d be without them. Financially it’s a huge help, let alone the fact that it’s across the road from the hospital and I can be with Olena in three minutes.
“We just hope she’s happy and healthy, and whatever happens from here can be dealt with as it has been.”
DOING WELL: Olena Daley was born with lumbar syndrome.