Baby Olena’s brave bat­tle for healthy life

Central Queensland News - - NEWS -

LIT­TLE Olena Da­ley has been fight­ing ev­ery sin­gle day from the mo­ment she was born.

Olena was born with lum­bar syn­drome, de­scribed as a rare con­di­tion that ap­pears as a he­man­gioma, or mul­ti­ple he­man­giomas, on the lower body, in as­so­ci­a­tion with other con­gen­i­tal anom­alies.

In Olena’s case, she was born with a teth­ered spinal cord as well as some of her in­ter­nal or­gans be­ing “jum­bled”.

Since birth, Olena has had to un­dergo five surg­eries.

“Olena needed to have surgery to de­tach her spinal cord, which has al­lowed her to walk, move and func­tion like a nor­mal kid,” Olena’s mum Fiona Da­ley said.

“If she didn’t have that surgery, it is pos­si­ble none of that would have been pos­si­ble for her.

“She also had to un­dergo surgery to fix her in­ter­nal or­gans to where they should be.”

Mrs Da­ley said Olena was now do­ing re­ally well.

“She is hit­ting all her mile­stones,” she said.

“She is walk­ing, talk­ing and is just a happy lit­tle girl.

“We don’t have to have any more surg­eries for her at this point, but she will have to see the sur­geons for the rest of her life, so that could change.”

She said the fam­ily was for­ever grate­ful to the sur­geons and Ron­ald McDon­ald House for their amaz­ing work and sup­port.

“We are su­per grate­ful her sur­geons wanted to do all her surg­eries early in life so she wouldn’t re­mem­ber any of them,” she said.

“Ron­ald McDon­ald House has been so great. I don’t want to think about where we’d be with­out them. Fi­nan­cially it’s a huge help, let alone the fact that it’s across the road from the hospi­tal and I can be with Olena in three min­utes.

“We just hope she’s happy and healthy, and what­ever hap­pens from here can be dealt with as it has been.”

DO­ING WELL: Olena Da­ley was born with lum­bar syn­drome.

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