NDIS just ‘brilliant’ for helping Cassandra
MARY-ANN and Stephen Crowe’s daughter, Cassandra, has a wicked sense of humour, adores life, is fond of people and regularly tackles 1000-piece jigsaw puzzles.
Cassandra, who has Down syndrome, finds joy in colouring-in and cooking. She is intuitive and loves to dance.
Mrs Crowe said her daughter also loved family gatherings – she “likes to be the glue and keep everyone together”.
But Cassandra has a raft of health complications and her condition is worsening.
Cassandra was approved for a National Disability Insurance Scheme package in February and Mrs Crowe said this week she has never felt so supported in caring for her 39-year-old daughter.
Cassandra is deaf and suffers from life-threatening heart complications, including a hole in the heart and a malformed valve. She has gastroesophageal reflux disease, a long-term condition that causes major digestive issues, and she’s epileptic.
Mr and Mrs Crowe, who own and run the Jacaranda Country Motel in St George, said they had nothing but praise for the “brilliant” NDIS and believed patients and their families will benefit from an anticipated increase in care services to the region as local jobs and investment were generated through the scheme. “The biggest hold-up is with the equipment that has been approved,” Mrs Crowe said.