Maryanne, 36

Dubbo Photo News - - Issue -

What is it that you strug­gle with?

I have mul­ti­ple scle­ro­sis (re­laps­ing re­mit­ting). I strug­gle with the un­pre­dictabil­ity of the con­di­tion. I have good days and bad days. My bal­ance can be af­fected from time to time, with weak­ness on the left side of my body (arms and legs) which im­pacts on my abil­ity to walk for short pe­ri­ods of time, along with slurred speech, loss of con­trol of fa­cial mus­cles and,pins and nee­dles. Anx­i­ety is a sec­ondary con­di­tion as­so­ci­ated with this au­toim­mune dis­ease which oc­curs as a re­sult of the un­pre­dictabil­ity of MS.

How long has it been a prob­lem for you?

I have been di­ag­nosed for 12 months. How­ever, the symp­toms have been present for be­tween five and eight years. I failed to recog­nise it as I dis­missed the symp­toms.

How does it af­fect your daily life?

When I have had a re­lapse, I have been un­able to work for a month or so or care for my­self and my three year old. I’m lucky I have such a sup­port­ive hus­band and I am also lucky I have pe­ri­ods of re­mis­sion. Gen­er­ally peo­ple with the re­mit­ting and re­laps­ing form of MS have a ma­jor re­lapse ev­ery one to two years.

How do other peo­ple’s ac­tions or opin­ions af­fect you and your con­di­tion?

My work­place is ex­tremely sup­port­ive of my con­di­tion, which helps me ef­fec­tively man­age my con­di­tion, lifestyle and my role. I have found that I have to ex­plain to peo­ple that MS af­fects peo­ple dif­fer­ently, there­fore MS is not the same for ev­ery­body. MS can have many symp­toms which can not be seen. The clas­sic case was when I had to use a dis­abled park­ing space af­ter a re­lapse and was hav­ing dif­fi­culty walk­ing into the shop­ping and a mem­ber of pub­lic told me I shouldn’t be us­ing the space as I didn’t have a dis­abil­ity.

How do you think the com­mu­nity can be bet­ter ed­u­cated about this?

MS Aus­tralia do a great job. How­ever, more aware­ness could be raised in the wider com­mu­nity by sup­port­ing the MS so­ci­ety through the Kiss MS away day, MS swimathon and MS rea­dathon to raise aware­ness of this con­di­tion. There is no cure for MS and sci­en­tists still don’t know what causes it. MS is the most com­mon neu­ro­log­i­cal con­di­tion in young adults.

Newspapers in English

Newspapers from Australia

© PressReader. All rights reserved.