Dream comes true for Ea­gles fan Shan­non

Eastern Reporter - - Front Page -

ONE of Shan­non Sto­bie’s dreams is com­ing true.

The West Coast Ea­gles fan from Bayswa­ter is go­ing to his first AFL game on May 31.

Shan­non (10) suf­fers from a rare and life-threat­en­ing con­di­tion called as­phyx­i­at­ing tho­racic dys­tro­phy, or Je­une syn­drome, an in­her­ited bone growth dis­or­der characterised by a small chest, short ribs and short­ened bones.

Ev­ery bone in Shan­non’s body is dis­lo­cated and his lungs are the size of a 20-week-old baby’s, forc­ing him to breathe with the help of a ven­ti­la­tor.

Af­ter meet­ing Shan­non and his fam­ily ear­lier this month and hear­ing their story, the Eastern Re­porter en­deav­oured to make his dream come true.

Last week, Shan­non re­ceived four tick­ets to the West Coast Ea­gles vs Gee­long Cats game on May 31 and the chance to watch the play­ers dur­ing their warm-up.

Pic­ture: Mar­cus Whisson

A cheeky Shan­non couldn’t con­tain his ex­cite­ment.

Mother Sa­man­tha said go­ing to an Ea­gles game had been a long-held dream of Shan­non’s.

“In hos­pi­tal, he would watch the games and no one could in­ter­rupt him,” she said.

“We even made a bed­pan hat for him with the Ea­gles colours on it.

“He is so ex­cited to go to the game that he hasn’t stopped talk­ing about it.”

Www.com­mu­ni­typix.com.au d437916

EasternRe­porter jour­nal­ist Lau­ren Pilat hands an ex­cited Shan­non Sto­bie (10) his tick­ets to the Ea­gles-Cats game, watched by his mother Sa­man­tha.

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