Ev­ery day a strug­gle for lit­tlie

Mt Druitt - St Mary's Standard (East) - - NEWS -

AS JEN­NIFER Weeks looks ahead to her twins’ fifth birth­day in May, she said it was hard know­ing one day Indy-Rose might not be there to cel­e­brate.

Hav­ing moved into tem­po­rary hous­ing at Black­ett, Ms Weeks hopes to re­lo­cate her fam­ily into dis­abil­ity hous­ing as soon as pos­si­ble.

Be­yond that, she said, she dreamt of one day cre­at­ing a room repli­cat­ing the out­doors for her daugh­ter.

“I’d just love her to not have to be cooped up in­side all the time, to have a room out­side that looks like a back­yard,” Ms Weeks said.

She said she wanted to make the most of the time she had with her daugh­ter.

“Ev­ery day is a strug­gle. I have to be so care­ful to plan around the weather and only go places with air-con­di­tion­ing,” she said.

“Indy-Rose has also had so many re­ac­tions to dif­fer­ent foods, I am al­ways wor­ried what will cause a re­ac­tion next.

“But the hard­est part is not know­ing how long Indy will live. Doc­tors have told me they doubt she will make it to her teens.”

Ms Week’s for­mer part­ner Carli McIn­er­ney shares the par­ent­ing of the twins and says she just hopes to find a per­ma­nent home where Indy-Rose and Khay­den can re­ally get set­tled.

“It would be great just to not have to move around so much. She (Indy-Rose) needs sta­bil­ity and to live some­where close to doc­tors,” Ms McIn­er­ney said.

Indy-Rose is look­ing for­ward to her fifth birth­day.

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