Every day a struggle for littlie
AS JENNIFER Weeks looks ahead to her twins’ fifth birthday in May, she said it was hard knowing one day Indy-Rose might not be there to celebrate.
Having moved into temporary housing at Blackett, Ms Weeks hopes to relocate her family into disability housing as soon as possible.
Beyond that, she said, she dreamt of one day creating a room replicating the outdoors for her daughter.
“I’d just love her to not have to be cooped up inside all the time, to have a room outside that looks like a backyard,” Ms Weeks said.
She said she wanted to make the most of the time she had with her daughter.
“Every day is a struggle. I have to be so careful to plan around the weather and only go places with air-conditioning,” she said.
“Indy-Rose has also had so many reactions to different foods, I am always worried what will cause a reaction next.
“But the hardest part is not knowing how long Indy will live. Doctors have told me they doubt she will make it to her teens.”
Ms Week’s former partner Carli McInerney shares the parenting of the twins and says she just hopes to find a permanent home where Indy-Rose and Khayden can really get settled.
“It would be great just to not have to move around so much. She (Indy-Rose) needs stability and to live somewhere close to doctors,” Ms McInerney said.
Indy-Rose is looking forward to her fifth birthday.