Fighting the odds
Every day with Indy-Rose Weeks, of Blackett, is a blessing to her family as she faces many challenging medical conditions.
FROM the day she was born, doctors held little hope for Indy-Rose Weeks.
She was born a twin but, unlike brother Khayden who weighed 3.86kg, she weighed just 2.27kg.
Tests have shown the little girl has a deletion of Chromosome 9, a tumour behind her left eye, and is lactose intolerant.
She was never expected to walk or talk and a severe al- lergy to the sun and overheating means she risks complete respiratory failure if she is in temperatures above 28C.
Mum Jennifer Weeks provides full-time care to IndyRose and said her daughter continually inspired her.
“She loves Frozen and Dora and puppies, and she is still quite intelligent in some ways even despite her developmental delays,” Ms Weeks said.
“I think being a twin and having her other older brothers and sisters has really helped her develop more than she was ever expected to.”
Ms Weeks said trying to create a stable and safe environment for Indy-Rose hadn’t always been easy.
“It breaks my heart to think she will never get to enjoy playing outside like other kids,” she said.
“If she is in the sun or gets too hot she breaks out in hives. Her nose bleeds and we have to get her to hospital before she has complete respiratory failure.
“This is why she has to be in air-conditioning constantly.”
Indy-Rose has mastered some words but communicates mostly by signing.
And, while Khayden is in some size six clothes, IndyRose still wears size one.
Ms Weeks said the hardest part was not knowing how long Indy-Rose had left to live.
Indy-Rose Weeks and her twin brother Khayden with their mother Jennifer and (inset) a baby photo of the twins.
Four-year-old Indy-Rose Weeks, with mother Jennifer Weeks, surprises and inspires her family daily despite her many medical conditions.