Fight­ing the odds

Ev­ery day with Indy-Rose Weeks, of Black­ett, is a bless­ing to her fam­ily as she faces many chal­leng­ing med­i­cal con­di­tions.

Mt Druitt - St Mary's Standard (East) - - FRONT PAGE - Ali­son Bald­ing

FROM the day she was born, doc­tors held lit­tle hope for Indy-Rose Weeks.

She was born a twin but, un­like brother Khay­den who weighed 3.86kg, she weighed just 2.27kg.

Tests have shown the lit­tle girl has a dele­tion of Chro­mo­some 9, a tu­mour be­hind her left eye, and is lac­tose in­tol­er­ant.

She was never ex­pected to walk or talk and a se­vere al- lergy to the sun and over­heat­ing means she risks com­plete res­pi­ra­tory fail­ure if she is in tem­per­a­tures above 28C.

Mum Jen­nifer Weeks pro­vides full-time care to IndyRose and said her daugh­ter con­tin­u­ally in­spired her.

“She loves Frozen and Dora and pup­pies, and she is still quite in­tel­li­gent in some ways even de­spite her de­vel­op­men­tal de­lays,” Ms Weeks said.

“I think be­ing a twin and hav­ing her other older brothers and sis­ters has re­ally helped her de­velop more than she was ever ex­pected to.”

Ms Weeks said try­ing to cre­ate a sta­ble and safe en­vi­ron­ment for Indy-Rose hadn’t al­ways been easy.

“It breaks my heart to think she will never get to en­joy play­ing out­side like other kids,” she said.

“If she is in the sun or gets too hot she breaks out in hives. Her nose bleeds and we have to get her to hos­pi­tal be­fore she has com­plete res­pi­ra­tory fail­ure.

“This is why she has to be in air-con­di­tion­ing con­stantly.”

Indy-Rose has mas­tered some words but com­mu­ni­cates mostly by sign­ing.

And, while Khay­den is in some size six clothes, IndyRose still wears size one.

Ms Weeks said the hard­est part was not know­ing how long Indy-Rose had left to live.

Main pic­ture: PETER KELLY

Indy-Rose Weeks and her twin brother Khay­den with their mother Jen­nifer and (in­set) a baby photo of the twins.

Pic­ture: PETER KELLY

Four-year-old Indy-Rose Weeks, with mother Jen­nifer Weeks, sur­prises and in­spires her fam­ily daily de­spite her many med­i­cal con­di­tions.

Newspapers in English

Newspapers from Australia

© PressReader. All rights reserved.