Ai­cardi-Goutieres syn­drome

Mt Druitt - St Mary's Standard (East) - - NEWS -

›› Ai­cardi-Goutieres syn­drome is a dev­as­tat­ing ex­tremely rare, de­gen­er­a­tive, in­cur­able dis­ease which af­fects the brain, im­mune sys­tem and the skin

›› The course of the dis­ease is se­vere and pro­gres­sive where death oc­curs in 25 per cent of pa­tients be­fore the age of 17

›› There are only nine known peo­ple in the world with the dis­ease ›› Richard Ab­boud’s fam­ily is ask­ing for sup­port to re­lieve some fi­nan­cial stress and en­able them to buy new med­i­cal equip­ment as well as a car to be able to trans­fer him and ac­com­mo­date his wheel­chair when he needs to go to school, ther­apy and hos­pi­tal

Newspapers in English

Newspapers from Australia

© PressReader. All rights reserved.