Help with Hunt­ing­ton’s

South Burnett Times - - NEWS - Katherine Morris katherine. morris@ south­bur­nett­times. com. au

They didn’t know what Hunt­ing­ton’s was at the time – the gene wasn’t dis­cov­ered un­til 1993 — Robert West­ley

AFTER the Lur­ton fam­ily shared their story call­ing peo­ple to be more aware of Hunt­ing­ton’s dis­ease, Robert West­ley of­fered to help.

Mr West­ley’s wife Lu­cille died last year after a long bat­tle with the dis­ease.

She was 74 and was di­ag­nosed when she was 52.

When Mr West­ley lived in Bris­bane he was vi­cepres­i­dent of Hunt­ing­ton’s Queens­land.

He wanted to help the Lur­ton fam­ily to be in­volved with the or­gan­i­sa­tion that of­fered sup­port to suf­fer­ers and re­searched the dis­ease.

Seven of his nieces and neph­ews have the in­cur­able dis­ease.

His two sons have not been tested for the dis­ease.

“Her ( his wife’s) mother and grand­fa­ther prob­a­bly had it,” Mr West­ley said.

“They didn’t know what Hunt­ing­ton’s was at the time – the gene wasn’t dis­cov­ered un­til 1993.”

Mr West­ley said when Lu­cille was di­ag­nosed with the dis­ease she told him he could di­vorce her if he wanted to.

He replied: “Why on earth would I want to do that?”

Mr West­ley said it was hard to watch Lu­cille slowly die and said he would al­ways miss her, but was happy she was now at peace.

You can do­nate to help fam­i­lies liv­ing with Hunt­ing­ton’s Dis­ease, $ 50 can pro­vide 45mins of per­sonal sup­port to an in­di­vid­ual in need.

For more in­for­ma­tion go to hunt­ing­ton­sqld.org. au or phone 3435 4300.

PHOTO: KATHERINE MORRIS

SUP­PORT OF­FER: Robert West­ley was the vice- pres­i­dent of Hunt­ing­ton's Dis­ease and wants to help the Lur­ton fam­ily.

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