Help with Huntington’s
They didn’t know what Huntington’s was at the time – the gene wasn’t discovered until 1993 — Robert Westley
AFTER the Lurton family shared their story calling people to be more aware of Huntington’s disease, Robert Westley offered to help.
Mr Westley’s wife Lucille died last year after a long battle with the disease.
She was 74 and was diagnosed when she was 52.
When Mr Westley lived in Brisbane he was vicepresident of Huntington’s Queensland.
He wanted to help the Lurton family to be involved with the organisation that offered support to sufferers and researched the disease.
Seven of his nieces and nephews have the incurable disease.
His two sons have not been tested for the disease.
“Her ( his wife’s) mother and grandfather probably had it,” Mr Westley said.
“They didn’t know what Huntington’s was at the time – the gene wasn’t discovered until 1993.”
Mr Westley said when Lucille was diagnosed with the disease she told him he could divorce her if he wanted to.
He replied: “Why on earth would I want to do that?”
Mr Westley said it was hard to watch Lucille slowly die and said he would always miss her, but was happy she was now at peace.
You can donate to help families living with Huntington’s Disease, $ 50 can provide 45mins of personal support to an individual in need.
For more information go to huntingtonsqld.org. au or phone 3435 4300.
SUPPORT OFFER: Robert Westley was the vice- president of Huntington's Disease and wants to help the Lurton family.