Chipping away at CF
AUSTIN Delic has to take 11,000 tablets a year because he lives with cystic fibrosis (CF).
The 10-year-old South Perth resident was born with the genetic disease, which has affected his lungs and pancreas, and requires regular visits to the hospital.
Living with the condition means he needs to stick to a regime, which means waking up two hours before school to take the tablets. He also needs regular sport to exercise his lungs.
The silver lining of living with CF means that he needs a diet that is high in fats, sugars and salt.
“I need to eat a lot of potato chips; my mates are pretty envious and they always ask me for some,” he said.
“Life is pretty normal but I need to follow the regime.”
Ahead of 65 Roses Day on May 26, hundreds of volunteers and businesses are selling longstemmed roses to raise money.
“I just hope they can raise as much money as possible,” Austin said.
“I’m very appreciative that so many people are donating money and hopefully they can find a cure for CF.”
Austin’s mother Desley be volunteering during this week, spending time in the Cystic Fibrosis WA (CFWA) ahead of 65 Roses Day.
CFWA chief executive Nigel Barker said CF was robbing children of their futures and drowning their lungs in mucus, but they were fighting back in May.
“Over one million Australian adults carry the recessive gene that causes CF but don’t know it,” he said.
“Couples wanting to start a family can be screened for CF easily but over half of all babies are unplanned.”
South Perth resident Austin Delic with his dog Jet and his mother Desley. Austin has to take 11,000 tablets a year because he has CF.