Chip­ping away at CF

Southern Gazette (South Perth) - - STREET WATCH -

AUSTIN Delic has to take 11,000 tablets a year be­cause he lives with cys­tic fi­bro­sis (CF).

The 10-year-old South Perth res­i­dent was born with the ge­netic dis­ease, which has af­fected his lungs and pan­creas, and re­quires reg­u­lar vis­its to the hos­pi­tal.

Liv­ing with the con­di­tion means he needs to stick to a regime, which means wak­ing up two hours be­fore school to take the tablets. He also needs reg­u­lar sport to ex­er­cise his lungs.

The sil­ver lin­ing of liv­ing with CF means that he needs a diet that is high in fats, sug­ars and salt.

“I need to eat a lot of potato chips; my mates are pretty en­vi­ous and they al­ways ask me for some,” he said.

“Life is pretty nor­mal but I need to fol­low the regime.”

Ahead of 65 Roses Day on May 26, hun­dreds of vol­un­teers and busi­nesses are sell­ing long­stemmed roses to raise money.

“I just hope they can raise as much money as pos­si­ble,” Austin said.

“I’m very ap­pre­cia­tive that so many peo­ple are do­nat­ing money and hope­fully they can find a cure for CF.”

Austin’s mother Des­ley be vol­un­teer­ing dur­ing this week, spend­ing time in the Cys­tic Fi­bro­sis WA (CFWA) ahead of 65 Roses Day.

CFWA chief ex­ec­u­tive Nigel Barker said CF was rob­bing chil­dren of their futures and drown­ing their lungs in mu­cus, but they were fight­ing back in May.

“Over one mil­lion Aus­tralian adults carry the re­ces­sive gene that causes CF but don’t know it,” he said.

“Cou­ples want­ing to start a fam­ily can be screened for CF eas­ily but over half of all ba­bies are un­planned.”

South Perth res­i­dent Austin Delic with his dog Jet and his mother Des­ley. Austin has to take 11,000 tablets a year be­cause he has CF.

Newspapers in English

Newspapers from Australia

© PressReader. All rights reserved.