and there is no cure. It is typically fatal within two to three years of diagnosis and takes the lives of more than 10 Australians each week.
“MND crept up on Stacy and Mike. In mid-2009, Stacy noticed the reduced function – the ‘sprain’ was initially attributed to an old boxercise injury – in her right arm wasn’t improving. She found it difficult to raise her arm above her head when swimming. Her hand was gradually becoming unresponsive and her fingers were difficult to flex.
“But characteristically of sporty Stace, in August 2009 she went on holiday to Asia with her best friend Liz and cycled 600 kilometres from Bangkok to Cambodia.
“Weeks after her return her hand was no better and the suggestion of cancer from a physiotherapist propelled her to further invasive medical tests.
“A GP and three neurologists later, the grim diagnosis of MND was confirmed.
“Symptoms can progress rapidly and as Stacy experienced, it