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Sunday Herald Sun - Body and Soul - - FRONT PAGE -

and there is no cure. It is typ­i­cally fa­tal within two to three years of diagnosis and takes the lives of more than 10 Aus­tralians each week.

“MND crept up on Stacy and Mike. In mid-2009, Stacy no­ticed the re­duced func­tion – the ‘sprain’ was ini­tially at­trib­uted to an old box­er­cise in­jury – in her right arm wasn’t im­prov­ing. She found it dif­fi­cult to raise her arm above her head when swim­ming. Her hand was grad­u­ally be­com­ing un­re­spon­sive and her fin­gers were dif­fi­cult to flex.

“But char­ac­ter­is­ti­cally of sporty Stace, in Au­gust 2009 she went on hol­i­day to Asia with her best friend Liz and cy­cled 600 kilo­me­tres from Bangkok to Cam­bo­dia.

“Weeks af­ter her re­turn her hand was no bet­ter and the sug­ges­tion of cancer from a phys­io­ther­a­pist pro­pelled her to fur­ther in­va­sive med­i­cal tests.

“A GP and three neu­rol­o­gists later, the grim diagnosis of MND was con­firmed.

“Symp­toms can progress rapidly and as Stacy ex­pe­ri­enced, it

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