Sunday Herald Sun - - News - LU­CIE VAN DEN BERG MED­I­CAL RE­PORTER

LOTTOLAND faces be­ing banned un­der new state laws that take aim at ex­otic over­seas bet­ting schemes.

And gam­bling ad­ver­tis­ing near schools, or on road and rail in­fra­struc­ture, will go in a bid to shield chil­dren from bet­ting pro­mo­tions.

A 150m safety net will be thrown around all Vic­to­rian schools as part of the scheme, which was first flagged more than a year ago.

Out­door bill­boards, train sta­tions, bridges and even noise walls will also be no-go zones for gam­ing giants.

The state gov­ern­ment’s de­ci­sion al­low for the ban­ning of ex­otic wa­ger­ing, such as “bet­ting on lot­ter­ies”, will deal with con­cerns about plung­ing tax rev­enue from lo­cal lot­ter­ies — which must be spent on hos­pi­tals and char­i­ties.

Gi­bral­tar-based Lottoland, in which peo­ple ef­fec­tively bet on the out­comes of lot­ter­ies world­wide, has had a rapid rise in Vic­to­ria.

A $548 mil­lion “US Me­gaMil­lions” draw is among lot­ter­ies cus­tomers can bet on.

Un­der pro­posed changes, the gam­ing min­is­ter would be able to ban or re­strict com­pa­nies that of­fer ser­vices such as bet­ting on lot­ter­ies, or pre­vent other forms of wa­ger­ing that “present a higher risk of harm to the com­mu­nity or cre­ate con­sumer pro­tec­tion is­sues”.

New on­line lot­ter­ies may still be able to operate in Vic­to­ria if they meet cer­tain con­di­tions.

The gov­ern­ment says the laws will build on other ini­tia­tives aimed at tack­ling prob­lem gam­bling.

Gam­ing and Liquor Reg­u­la­tion Min­is­ter Mar­lene Kairouz said: “Kids should be able to go to school and get home with­out be­ing bom­barded by bet­ting ad­ver­tis­ing.

“This Bill will re­strict gam­bling ad­ver­tis­ing in pub­lic spa­ces, pro­tect­ing prob­lem gam­blers and other vul­ner­a­ble groups in our com­mu­nity.”

Gam­bling harm pre­ven­tion groups are likely to urge the gov­ern­ment to go even fur­ther in its ad­ver­tis­ing crack­down. CHAR­LIE Scholten is a one-of-a-kind child. After years of be­ing poked and prod­ded, and puz­zling doc­tors, the Mel­bourne tod­dler is the first per­son in the world to be di­ag­nosed with a unique med­i­cal con­di­tion.

His par­ents, Anna and Leigh Scholten, had no rea­son to sus­pect their se­cond son was any­thing but a healthy sib­ling for their el­dest child, Oliver.

It was only at eight months of age when they no­ticed Char­lie’s eye was turn­ing in­ward and he was start­ing to shake his head most un­usu­ally.

He was even­tu­ally di­ag­nosed with a rare ge­netic dis­or­der of the brain which can trig­ger a ma­jor seizure — ren­der­ing him un­re­spon­sive.

More than six dif­fer­ent med­i­cal spe­cial­ists in­ves­ti­gated the lit­tle boy from “top to toe”. Then, last year Char­lie’s symp­toms took a trou­bling turn.

“He had a small fall on to the car­pet and we thought he had con­cus­sion,” Ms Scholten said. “He went white as a sheet, he be­came dis­tressed and started vi­o­lently vom­it­ing.

“Since then, he has suf­fered at­tacks ev­ery two months on aver­age, usu­ally


in­duced by a su­per­fi­cial bump to the head or when he be­comes up­set.”

Dur­ing the episodes, last­ing for five hours, Char­lie be­comes un­re­spon­sive, and one at­tack was so se­vere he was put in in­ten­sive care.

A light bulb mo­ment came last year when neu­rol­o­gists at the Royal Chil­dren’s Hos­pi­tal got him tested for a cal­cium mu­ta­tion of the brain. In March this year, the test re­sults from over­seas con­firmed their sus­pi­cions.

Char­lie’s mu­ta­tion was de­tected in the CACNA1A gene. The re­port said it was a novel se­quence that was not in any avail­able med­i­cal lit­er­a­ture or mu­ta­tion data­bases glob­ally. It’s pos­si­ble that other peo­ple may have it, but are yet to be di­ag­nosed.

The mu­ta­tion causes Char­lie’s brain to pro­duce cal­cium in an un­usual way that dis­rupts the elec­tri­cal sig­nals.

“I was re­lieved to get a di­ag­no­sis and we didn’t have to keep putting him through all those tests,” Ms Scholten said. “But my heart sank be­cause we don’t have a way to fix it.”

The di­ag­no­sis has en­abled them to start tri­alling cal­cium chan­nel-block­ing drugs to re­duce symp­toms. And Char­lie at­tends the Cere­bral Palsy Ed­u­ca­tion Cen­tre (CPEC), with oc­cu­pa­tional ther­a­pists, phys­io­ther­a­pists and speech ther­a­pists.

It’s help­ing him im­prove his speech, fine and gross mo­tor skills and se­vere ataxia, which makes it hard to con­trol his mus­cles and bal­ance.

While his prog­no­sis is un­clear, his par­ents h hope th the treat­ments and ther­apy will help him con­trol his tremors, en­joy hav­ing a con­ver­sa­tion and walk in­de­pen­dently.

“We are pos­i­tive and de­ter­mined to sup­port, en­cour­age and drive Char­lie to be the best he pos­si­bly can be with this con­di­tion,” Ms Scholten said.

It costs $32,000 each year for CPEC to pro­vide a child with care. lu­cie.van­den­berg@news.com.au mel­bourne­marathon2017.every­day hero.com/au/char­lie-s-mis­sion-to-walk

TALK about flush with cash. A Geneva of­fi­cial has con­firmed a news­pa­per re­port that said wads of cutup 500-euro notes (about $600 each) mys­te­ri­ously turned up jammed into the toi­lets of three restau­rants and a bank in re­cent months. One bunch caused...

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