World cere­bral day cel­e­brated

Bhutan Times - - Home - Bhuma Ghal­ley

The World cere­bral Palsy day was cel­e­brated on 6th Oc­to­ber 2017. World cere­bral palsy day is a move­ment of peo­ple with cere­bral palsy (CP) and their fam­i­lies, and the or­ga­ni­za­tion that sup­port them, in more than 60 coun­tries.

Its vi­sion is to en­sure that chil­dren and adult with CP have the same rights, ac­cess and op­por­tu­nity as any­one else in our so­ci­ety. From 2016 it was started to cel­e­brate the CP Day in the coun­try.

CP is not just day-by-day re­al­ity it has a mo­mentby-mo­ment that im­pact in peo­ple’s lives- not just in the lives of those with CP, but among fam­i­lies and care­giver, as well.

The Ex­ec­u­tive Direc­tor of Abil­ity Bhutan So­ci­ety (ABS) Beda Giri said that they cel­e­brated the day as an aware­ness day.

She said that it is an op­por­tu­nity to cel­e­brate and ex­press pride in the lives and achieve­ments of those with CP and con­nect or­gan­i­sa­tion across the globe so they are bet­ter equipped to meet the needs of those with CP.

Ex­ec­u­tive direc­tor said that; cre­ate new so­lu­tion to ev­ery­day prob­lems. Act as a cat­a­lyst for so­cial change and ed­u­ca­tion cam­paigns that cre­ate so­lu­tion to uni­ver­sal chal­lenges.

Pro­duce tan­gi­ble, ac­tions and out­comes that mea­sur­ably im­prove the lives of those with CP. Raise aware­ness of CP and the is­sues that af­fect peo­ple with CP at a lo­cal, na­tional and in­ter­na­tional level to cre­ate more in­clu­sive so­ci­eties.

Ex­ec­u­tive direc­tor added that the chal­lenges faced by the peo­ple liv­ing with cere­bral palsy that peo­ple with cere­bral palsy may ex­pe­ri­ence un­con­trolled or un­pre­dictable move­ments, mus­cles can be stiff, weak or tight and in some cases peo­ple have shaky move­ment or tremors.

Peo­ple with se­vere cere­bral palsy may also have dif­fi­cul­ties with swal­low­ing, breath­ing head and neck con­trol, blad­der and bowel con­trol eat­ing and have den­tal and di­ges­tive prob­lems.

She also added that peo­ple liv­ing with the cere­bral palsy have more chal­lenges than liv­ing with­out dis­abil­ity, es­pe­cially if the com­pli­ca­tions are se­vere.

Ex­ec­u­tive direc­tor said that it can be a bur­den on a fam­ily to care cere­bral palsy, but with good plan­ning, rou­tines, good med­i­cal care, and re­sources and sup­port, a fam­ily can pro­vide a great life for a cere­bral palsy.

There is noth­ing to be gained in blam­ing peo­ple for their ig­no­rance about CP.

Aum Beda said that, World CP Day is work­ing to put an end to it. Around the world in­di­vid­u­als and or­ga­ni­za­tion are work­ing to dis­pel the myths and break down the bar­ri­ers to en­sures that peo­ple with CP, and their fam­i­lies, can live full, con­tribut­ing lives.

She also said we can treat them equally as any in­di­vid­ual with­out dis­abil­ity. “We can make them our friends and en­sure that their rights are pro­tected. We should also give them op­por­tu­nity to share their views and opin­ion and we must re­spect that.”

And she also said that ABS is still in de­vel­op­ing stage. How­ever, com­pared to last 5 years the ABS has more re­sources for in­di­vid­u­als with cere­bral palsy such as ref­er­ences book, adap­tive equip­ment such as chair, spoon and ther­apy toys.

Re­cently the ABS had also de­vel­oped an in­for­ma­tion pack­age book­let on cere­bral palsy with tech­ni­cal sup­port from uni­ver­si­ties in Aus­tralia.

But the ABS still needs to ac­quire var­i­ous re­sources so that they can pro­vide qual­ity ser­vices.

There are many spe­cific prod­ucts like non-spill cups, the abil­ity to type on a com­puter us­ing an eye scan­ner or an elec­tric wheelchair that can have a pow­er­ful ef­fect on the qual­ity of life of our com­mu­nity mem­ber.

Mean­while, the ABS pub­lic ben­e­fit or­ga­ni­za­tion was founded on the recog­ni­tion of per­son liv­ing with mod­er­ate to se­vere di­verse abil­i­ties, pri­mary chil­dren and their fam­i­lies have spe­cial needs.

It was reg­is­tered on 10th of Novem­ber, 2011 with the Civil So­ci­ety Or­ga­ni­za­tion Au­thor­ity of Bhutan (CSOA) and was in­au­gu­rated by Her Majesty the Gyalt­suen Jet­sun Pema Wangchuck, The Royal Par­ton of ABS on April 6th, 2012.

There are said to be 17 mil­lion peo­ple world­wide liv­ing with CP and 350 mil­lion peo­ple World Wide con­nected to a child or adult with CP like all other dis­abil­i­ties of men­tal or phys­i­cal can be de­fined to de­vel­op­ing brain.

The Abil­ity Bhutan So­ci­ety ob­served World Cere­bral Palsy (CP) on 6th Oc­to­ber with chil­dren and their fam­i­lies with a theme to cel­e­brate and ex­press pride in the lives and achieve­ments of those with CP and the peo­ple and the or­gan­i­sa­tions that sup­port them.

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