World cerebral day celebrated
The World cerebral Palsy day was celebrated on 6th October 2017. World cerebral palsy day is a movement of people with cerebral palsy (CP) and their families, and the organization that support them, in more than 60 countries.
Its vision is to ensure that children and adult with CP have the same rights, access and opportunity as anyone else in our society. From 2016 it was started to celebrate the CP Day in the country.
CP is not just day-by-day reality it has a momentby-moment that impact in people’s lives- not just in the lives of those with CP, but among families and caregiver, as well.
The Executive Director of Ability Bhutan Society (ABS) Beda Giri said that they celebrated the day as an awareness day.
She said that it is an opportunity to celebrate and express pride in the lives and achievements of those with CP and connect organisation across the globe so they are better equipped to meet the needs of those with CP.
Executive director said that; create new solution to everyday problems. Act as a catalyst for social change and education campaigns that create solution to universal challenges.
Produce tangible, actions and outcomes that measurably improve the lives of those with CP. Raise awareness of CP and the issues that affect people with CP at a local, national and international level to create more inclusive societies.
Executive director added that the challenges faced by the people living with cerebral palsy that people with cerebral palsy may experience uncontrolled or unpredictable movements, muscles can be stiff, weak or tight and in some cases people have shaky movement or tremors.
People with severe cerebral palsy may also have difficulties with swallowing, breathing head and neck control, bladder and bowel control eating and have dental and digestive problems.
She also added that people living with the cerebral palsy have more challenges than living without disability, especially if the complications are severe.
Executive director said that it can be a burden on a family to care cerebral palsy, but with good planning, routines, good medical care, and resources and support, a family can provide a great life for a cerebral palsy.
There is nothing to be gained in blaming people for their ignorance about CP.
Aum Beda said that, World CP Day is working to put an end to it. Around the world individuals and organization are working to dispel the myths and break down the barriers to ensures that people with CP, and their families, can live full, contributing lives.
She also said we can treat them equally as any individual without disability. “We can make them our friends and ensure that their rights are protected. We should also give them opportunity to share their views and opinion and we must respect that.”
And she also said that ABS is still in developing stage. However, compared to last 5 years the ABS has more resources for individuals with cerebral palsy such as references book, adaptive equipment such as chair, spoon and therapy toys.
Recently the ABS had also developed an information package booklet on cerebral palsy with technical support from universities in Australia.
But the ABS still needs to acquire various resources so that they can provide quality services.
There are many specific products like non-spill cups, the ability to type on a computer using an eye scanner or an electric wheelchair that can have a powerful effect on the quality of life of our community member.
Meanwhile, the ABS public benefit organization was founded on the recognition of person living with moderate to severe diverse abilities, primary children and their families have special needs.
It was registered on 10th of November, 2011 with the Civil Society Organization Authority of Bhutan (CSOA) and was inaugurated by Her Majesty the Gyaltsuen Jetsun Pema Wangchuck, The Royal Parton of ABS on April 6th, 2012.
There are said to be 17 million people worldwide living with CP and 350 million people World Wide connected to a child or adult with CP like all other disabilities of mental or physical can be defined to developing brain.
The Ability Bhutan Society observed World Cerebral Palsy (CP) on 6th October with children and their families with a theme to celebrate and express pride in the lives and achievements of those with CP and the people and the organisations that support them.