MS­pa­tients de­serve ac­cess to pro­ce­dure

Nova Sco­tia should be of­fer­ing treat­ment to the world

Cape Breton Post - - WEEKEND FEEDBACK - Max­ine LeBlanc-David D’Es­cousse

I am writ­ing to all MLAs in the hope that they will help the more than 3,000 mul­ti­ple scle­ro­sis suf­fers in Nova Sco­tia. The At­lantic prov­inces has the high­est rate of MS in Canada – 350 for 100,000 peo­ple.

I am ask­ing our MLAs to take us out of dan­ger by fast-tracking ap­proval for the pro­ce­dure to cor­rect chronic cere­bro-spinal ve­nous in­suf­fi­ciency in MS pa­tients. The pro­ce­dure on the jugu­lar veins is al­ready be­ing per­formed by Cana­dian vas­cu­lar sur­geons but not yet for the treat­ment in MS. It is a safe pro­ce­dure with no harm­ful drugs.

Even Dr. Paolo Zam­boni who is pro­mot­ing the pro­ce­dure agrees that fur­ther study into CCSVI in MS should be done. I am aware that MLAs sym­pa­thize with our lot but feel­ing sorry for us does not help.

For most of us there are no dis­ease-mod­i­fy­ing drugs avail­able. The first blind study com­ing out of Buf­falo, New York, of ve­nous in­suf­fi­ciency preva­lence in MS pa­tients shows promis­ing re­sults. In many parts of the world there is enough ev­i­dence to show that when the veins are re­paired the health of the MS pa­tients im­proves.

Some got bet­ter, and some haven’t had an at­tack since. To stop the pro­gres­sion would be sig­nif­i­cant. For most of us, there is not a drug that has truly ac­com­plished that.

There is no rea­son we shouldn’t be ex­am­ined for CCSVI and, if it is needed, have this one-to two- hour pro­ce­dure. It would be a treat­ment op­tion where none ex­ists.

MS suf­fers do not have the lux­ury of time. Ev­ery day we get closer to never be­ing able to walk again. Dam­age most of­ten can­not be re­versed. That is why we can­not wait for years for the pro­ce­dure to be stud­ied. It would be ir­re­spon­si­ble and risky not to help your MS con­stituents.

I pro­pose that Nova Sco­tia be­come a world leader in the fight to con­trol MS. Have all of our MS suf­fers tested for CCSVI. Re­pair the veins if nec­es­sary and then stand back while the world watches in awe.

His­tory is be­ing made here. We could be a big part of it and our peo­ple, as well as the 2.5 mil­lion MS world-wide, would ben­e­fit. Stop MS in its tracks! The writer has cre­ated the Face­book page called CCSVI in MS for Nova Sco­tia.

Newspapers in English

Newspapers from Canada

© PressReader. All rights reserved.