MSpatients deserve access to procedure
Nova Scotia should be offering treatment to the world
I am writing to all MLAs in the hope that they will help the more than 3,000 multiple sclerosis suffers in Nova Scotia. The Atlantic provinces has the highest rate of MS in Canada – 350 for 100,000 people.
I am asking our MLAs to take us out of danger by fast-tracking approval for the procedure to correct chronic cerebro-spinal venous insufficiency in MS patients. The procedure on the jugular veins is already being performed by Canadian vascular surgeons but not yet for the treatment in MS. It is a safe procedure with no harmful drugs.
Even Dr. Paolo Zamboni who is promoting the procedure agrees that further study into CCSVI in MS should be done. I am aware that MLAs sympathize with our lot but feeling sorry for us does not help.
For most of us there are no disease-modifying drugs available. The first blind study coming out of Buffalo, New York, of venous insufficiency prevalence in MS patients shows promising results. In many parts of the world there is enough evidence to show that when the veins are repaired the health of the MS patients improves.
Some got better, and some haven’t had an attack since. To stop the progression would be significant. For most of us, there is not a drug that has truly accomplished that.
There is no reason we shouldn’t be examined for CCSVI and, if it is needed, have this one-to two- hour procedure. It would be a treatment option where none exists.
MS suffers do not have the luxury of time. Every day we get closer to never being able to walk again. Damage most often cannot be reversed. That is why we cannot wait for years for the procedure to be studied. It would be irresponsible and risky not to help your MS constituents.
I propose that Nova Scotia become a world leader in the fight to control MS. Have all of our MS suffers tested for CCSVI. Repair the veins if necessary and then stand back while the world watches in awe.
History is being made here. We could be a big part of it and our people, as well as the 2.5 million MS world-wide, would benefit. Stop MS in its tracks! The writer has created the Facebook page called CCSVI in MS for Nova Scotia.