Cana­dian Lyme Disease Foun­da­tion wants new ways to bat­tle the ill­ness

‘No ev­i­dence to sup­port lim­it­ing an­tibi­otic treat­ment to 28 days,’ says char­i­ta­ble or­ga­ni­za­tion’s founder

Metro Canada (Ottawa) - - News -

Jim Wil­son, a for­mer Lyme disease suf­ferer and founder of the Cana­dian Lyme Disease Foun­da­tion (CLDF), has no idea why Cana­dian hos­pi­tals still fol­low Amer­i­can guide­lines from 2006 on how to treat the con­di­tion.

“They’re very com­mit­ted to the United States pol­icy for some rea­son, rather than set­ting their own pol­icy,” he told Metro by phone from B.C. on Thurs­day. “We’ve tried to in­ter­ject into the pol­i­cy­mak­ing de­ci­sions ( with) the pa­tients and their ex­perts’ per­spec­tive, but have been re­fused at each time.”

The char­i­ta­ble or­ga­ni­za­tion wants to change the govern­ment’s per­cep­tion that it ought to fol­low Amer­i­can guide­lines, which many U.S. doc­tors don’t even fol­low them­selves.

“The States have en­acted leg­is­la­tion al­low­ing these doc­tors to step out of the grip of the col­lege who im­pose these ter­ri­ble guide­lines,” said Wil­son, adding Cana­dian doc­tors who ig­nore the rules face be­ing shut down by their pro­vin­cial col­leges of physi­cians.

“And there’s ab­so­lutely no ev­i­dence to sup­port lim­it­ing an­tibi­otic treat­ment to 28 days. It doesn’t work with dis­sem­i­nated or chronic Lyme disease.”

CHEO nurse Dawn Lavarn­way says the diagnostic method used by Cana­dian doc­tors is also flawed and Health Canada knows it.

The fed­eral agency noted in the Oc­to­ber 2012 is­sue of its Cana­dian Ad­verse Re­ac­tion News­let­ter that cur­rent Lyme disease test kits have been found to have “lim­i­ta­tions of sen­si­tiv­ity and speci­ficity, par­tic­u­larly when used

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