Canadian Lyme Disease Foundation wants new ways to battle the illness
‘No evidence to support limiting antibiotic treatment to 28 days,’ says charitable organization’s founder
Jim Wilson, a former Lyme disease sufferer and founder of the Canadian Lyme Disease Foundation (CLDF), has no idea why Canadian hospitals still follow American guidelines from 2006 on how to treat the condition.
“They’re very committed to the United States policy for some reason, rather than setting their own policy,” he told Metro by phone from B.C. on Thursday. “We’ve tried to interject into the policymaking decisions ( with) the patients and their experts’ perspective, but have been refused at each time.”
The charitable organization wants to change the government’s perception that it ought to follow American guidelines, which many U.S. doctors don’t even follow themselves.
“The States have enacted legislation allowing these doctors to step out of the grip of the college who impose these terrible guidelines,” said Wilson, adding Canadian doctors who ignore the rules face being shut down by their provincial colleges of physicians.
“And there’s absolutely no evidence to support limiting antibiotic treatment to 28 days. It doesn’t work with disseminated or chronic Lyme disease.”
CHEO nurse Dawn Lavarnway says the diagnostic method used by Canadian doctors is also flawed and Health Canada knows it.
The federal agency noted in the October 2012 issue of its Canadian Adverse Reaction Newsletter that current Lyme disease test kits have been found to have “limitations of sensitivity and specificity, particularly when used