SANTINO MATRUNDOLA’S STORY
This November 1st will be the first ever National Acromegaly Awareness Day. But what is acromegaly?
Usually, acromegaly develops from an excess growth hormone. In some, it’s signalled by an enlargement in the hands and feet. In others, it’s invisible— aside from the adverse and life-altering side effects including extreme fatigue, brain fog, joint pain, and vision problems. Santino Matrundola, owner and photographer of Fusion Photography, experienced the invisible later effects of the disease.
In March 2014, Santino visited the doctor with extreme daily migraines. He was sent away with antibiotics to treat a sinus infection. However, he knew it wasn’t a sinus infection when he momentarily lost vision in one eye while photographing an event a few weeks later. He went through emergency surgery to remove an invasive tumour in his pituitary gland. It was the culprit of his headaches and vision loss, pressing on nearby brain tissue. Santino was diagnosed with acromegaly.
As one of the constants throughout his struggle, his photography motivates him to find the positivity in his chaos. “Photography helps me on a daily basis,” he says. His photography business brings him even more joy than before. Now he uses photography to change the way others see themselves, as well as the way he sees himself.
Santino Matrundola taking a selfie at work