Everyday struggles of living with Parkinson’s
Sports fisherman finds support through Parkinson SuperWalk
Imagine waking up one day and not being able to do the things you’ve done your entire life. This is an everyday reality for the more than 1,600 people living with Parkinson’s disease in this province. This year 500 walkers are preparing to participate in Parkinson SuperWalk, the Society’s largest annual fundraising event.
Parkinson SuperWalk takes place this month in Carbonear, New Perlican, Corner Brook, Grand Falls-Windsor, Gander, Marystown, and St. John’s.
With a $ 100,000 goal, Parkinson Newfoundland & Labrador says it can continue to provide education and support services to people with Parkinson’s and the loved ones who are there to fight the every day battle alongside them, until there is a cure for this progressive brain disease.
Newfoundland sports fisherman, Wayne Dawe experienced a life altering moment one day as he went to put a worm at the end of his hook. He struggled with it. This was his first experience with Parkinson’s prior to his diagnosis at age 54 in 2004. Dawe realized something wasn’t right when his left hand began to tremble as he prepared his fishing rod for another day of trouting, something he had done numerous times before.
“ Since being diagnosed I have little reminders every day of my Parkinson’s; my mornings are slow to start, my wife helps me with my contact lenses, so I don’t poke my eye out. It takes me longer to tie my shoelaces and to do up my buttons. Even sipping a glass of water has become a challenge,” he says.
With support from his family, Dawe has taken on a positive attitude, speaking openly about his Parkinson’s with medical students and setting an example for his son who is pursuing a nursing degree. “I want to show my son that when things get rough you don’t fold. Somehow you look within yourself, draw on the resources you have, and move forward. You have to keep the faith. I’ve got Parkinson’s, but I am going to make sure it doesn’t slow me down without a fight,” says Wayne.
Parkinson Society Newfoundland & Labrador understands that treating this disease involves more than just finding a cure.