Out­pour­ing of sup­port for young Embree fam­ily

Di­ag­nosed with Good Pas­ture Syn­drome, fam­ily’s fu­ture is uncer­tain

The Pilot - - News - BY PA­TRICK MUR­PHY Pa­trick.Mur­phy@ad­ver­tis­ernl.ca

LEWISPORTE, NL – Com­mu­ni­ties in cen­tral New­found­land have opened their hearts and wal­lets to help out a young fam­ily strug­gling with a rare med­i­cal di­ag­no­sis.

This past Au­gust, 24-year-old Embree na­tive Steven Ed­wards was di­ag­nosed with Good Pas­ture Syn­drome, a rare au­toim­mune dis­or­der. The dis­ease causes an oth­er­wise healthy per­sons im­mune sys­tem to mis­tak­enly at­tack and de­stroy healthy body tis­sue. While lit­tle is known about the dis­ease, one of the sus­pected causes is ex­po­sure to chem­i­cal hy­dro­car­bons. Hy­dro­car­bons are a class of or­ganic chem­i­cal com­pounds com­posed only of the el­e­ments car­bon and hy­dro­gen and are the pri­mary el­e­ments found in pe­tro­leum and nat­u­ral gas ac­cord­ing to the Bri­tish En­cy­clopae­dia Bri­tan­nica.

For Ed­wards the di­ag­no­sis means an im­me­di­ate change of em­ploy­ment. The young New­found­lan­der had been work­ing in the Al­berta oil­fields for the last cou­ple of years, but that is no longer an op­tion.

“When we heard the news about Stephen we were all shock,” said Embree res­i­dent Glen­nis Pel­ley in a post on so­cial me­dia. “We set a goal of $500, well we made that all right, as of now over $3000 was do­nated.”

The com­mu­nity hosted a dart fundraiser at a lo­cal pub. A num­ber of area busi­nesses pitched in to help out, even the lo­cal bar­tenders got into the spirit says Pel­ley, do­nat­ing the evenings tips to the fundrais­ing ef­forts.

The re­sult, says Pel­ley, were as­tound­ing.

“What kind hearted peo­ple we have,” said Pel­ley. “Truly amaz­ing.”

The gen­eros­ity was not lim­ited to the event how­ever; Cathy and Ernie Watkins of the Twill­ingate Din­ner The­atre do­nated an ad­di­tional $1,000 to help sup­port the fam­ily.

Ed­wards is ex­pected to re­main in a St. John’s hospi­tal for the next sev­eral weeks at least while re­ceiv­ing treat­ments. The Pi­lot will pro­vide up­dates as more in­for­ma­tion be­comes avail­able.

Newspapers in English

Newspapers from Canada

© PressReader. All rights reserved.