Outpouring of support for young Embree family
Diagnosed with Good Pasture Syndrome, family’s future is uncertain
LEWISPORTE, NL – Communities in central Newfoundland have opened their hearts and wallets to help out a young family struggling with a rare medical diagnosis.
This past August, 24-year-old Embree native Steven Edwards was diagnosed with Good Pasture Syndrome, a rare autoimmune disorder. The disease causes an otherwise healthy persons immune system to mistakenly attack and destroy healthy body tissue. While little is known about the disease, one of the suspected causes is exposure to chemical hydrocarbons. Hydrocarbons are a class of organic chemical compounds composed only of the elements carbon and hydrogen and are the primary elements found in petroleum and natural gas according to the British Encyclopaedia Britannica.
For Edwards the diagnosis means an immediate change of employment. The young Newfoundlander had been working in the Alberta oilfields for the last couple of years, but that is no longer an option.
“When we heard the news about Stephen we were all shock,” said Embree resident Glennis Pelley in a post on social media. “We set a goal of $500, well we made that all right, as of now over $3000 was donated.”
The community hosted a dart fundraiser at a local pub. A number of area businesses pitched in to help out, even the local bartenders got into the spirit says Pelley, donating the evenings tips to the fundraising efforts.
The result, says Pelley, were astounding.
“What kind hearted people we have,” said Pelley. “Truly amazing.”
The generosity was not limited to the event however; Cathy and Ernie Watkins of the Twillingate Dinner Theatre donated an additional $1,000 to help support the family.
Edwards is expected to remain in a St. John’s hospital for the next several weeks at least while receiving treatments. The Pilot will provide updates as more information becomes available.