What is CHARGE syn­drome?

The Southern Gazette - - News -

In­for­ma­tion from the CHARGE Syn­drome Foun­da­tion web­site de­scribes it as a rec­og­niz­able ge­netic syn­drome with known pat­tern of fea­tures.

It is an ex­tremely com­plex syn­drome and can in­volve both ex­ten­sive med­i­cal and phys­i­cal dif­fi­cul­ties that can dif­fer from child to child.

Ba­bies with CHARGE syn­drome are of­ten born with life-threat­en­ing birth de­fects and many spend months in the hospi­tal and un­dergo many surg­eries and other treat­ments. Swal­low­ing and breath­ing prob­lems make life dif­fi­cult even when they come home. Most have hear­ing loss, vi­sion loss, and bal­ance prob­lems that de­lay their de­vel­op­ment and com­mu­ni­ca­tion. De­spite these seem­ingly in­sur­mount­able ob­sta­cles, chil­dren with CHARGE syn­drome of­ten far sur­pass their med­i­cal, phys­i­cal, ed­u­ca­tional and so­cial ex­pec­ta­tions.

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