What is CHARGE syndrome?
Information from the CHARGE Syndrome Foundation website describes it as a recognizable genetic syndrome with known pattern of features.
It is an extremely complex syndrome and can involve both extensive medical and physical difficulties that can differ from child to child.
Babies with CHARGE syndrome are often born with life-threatening birth defects and many spend months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems that delay their development and communication. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational and social expectations.