China’s first UDP cen­ter for chil­dren opens in Shang­hai

China Daily (Canada) - - SHANGHAI - ByZHOUWENTING in Shang­hai

zhouwent­ing@chi­nadaily. com.cn

China’s first di­ag­no­sis and treat­ment cen­ter for un­di­ag­nosed dis­eases in chil­dren was opened on March 3 at the Chil­dren’s Hos­pi­tal of Fu­dan Univer­sity in Shang­hai.

Es­tab­lished based on the stan­dards and model of the Un­di­ag­nosed Dis­eases Pro­gram (UDP), this cen­ter is the first in China as well as out­side of the United States. It will specif­i­cally cater to chil­dren suf­fer­ing from dis­eases that can­not be de­ter­mined by other med­i­cal in­sti­tu­tions in the coun­try.

“The top ex­perts from all de­part­ments will gather to dis­cuss a case once a week and im­ages of the pa­tients’ patho­log­i­cal sec­tion ex­am­i­na­tions will be sent to USbased, world-fa­mous chil­dren’s med­i­cal in­sti­tu­tions, such as Chil­dren’s Hos­pi­tal of Los An­ge­les and Bos­ton Chil­dren’s Hos­pi­tal, for a more au­thor­i­ta­tive over­all judg­ment,” said Wang Yi, vice-pres­i­dent of the hos­pi­tal who heads the UDP cen­ter.

“Here at the hos­pi­tal, ex­ploratory treat­ment plans for the rarest dis­eases are an­a­lyzed by the multi-dis­ci­plinary team which al­ways aims to de­liver max­i­mum ef­fect with min­i­mum risk. Such rare cases will also pro­vide clin­i­cal ex­pe­ri­ence for the doc­tors to treat sim­i­lar ones in the fu­ture,” she added.

Huang Guoy­ing, head of the chil­dren’s hos­pi­tal, said that the hos­pi­tal is the ideal choice to house the UDP cen­ter as it has the best multi-dis­ci­plinary team in the coun­try and is a lead­ing ex­pert in pae­di­atrics. Fur­ther­more, the hos­pi­tal is also equipped with cut­ting-edge med­i­cal fa­cil­i­ties, such as the Molec­u­lar Ge­netic Di­ag­no­sis Cen­ter.

“Us­ing this ad­vanced ap­pa­ra­tus, we can de­tect the molec­u­lar ba­sis of the dis­ease and de­ter­mine ge­netic de­fects from the pa­tient’s DNA sam­ple. About 200 rare dis­eases in 2,000 chil­dren have been di­ag­nosed this way,” Huang said.

Of­fi­cials at the UDP cen­ter added that the hos­pi­tal is plan­ning to cre­ate an ex­ten­sive net­work cov­er­ing the en­tire coun­try so that more of such pa­tients can re­ceive help.

At least 10 chil­dren have ben­e­fit­ted from the UDP cen­ter dur­ing its trial pe­riod. In late De­cem­ber, a 12-year-old girl from Ningbo city, Zhe­jiang prov­ince, suf­fered cough and fever for un­known rea­sons, which soon de­vel­oped to hemop­t­y­sis and shock. A CT scan re­vealed that there was dif­fuse hem­or­rhage in her lungs and her he­mo­glo­bin lev­els had dropped sig­nif­i­cantly. She later suf­fered from res­pi­ra­tory fail­ure.

When doc­tors from dif­fer­ent de­part­ments at the Ningbo Ma­ter­nity and Child Health Hos­pi­tal failed to de­ter­mine the cause of her ill­ness, she was quickly trans­ferred to the UDP cen­ter.

“Af­ter in-depth ex­am­i­na­tions, she was di­ag­nosed with mi­cro­scopic polyangi­itis. We then de­signed a pre­cise med­i­cal treat­ment plan for her and she man­aged to leave the In­ten­sive Care Unit af­ter about 20 days,” said Sun Li, the doc­tor in charge of the case.

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