China Daily (Hong Kong) - - IMAGE - Pho­tos by SONG LI | For China Daily

Ls­ince he was di­ag­nosed with the Prader-Willi Syn­drome at 3. In early March, his weight reached 167 kg. Re­cently, de­spite weight loss, he is still around 143 kg. Li, who is 1.5 me­ters tall, is de­ter­mined to lose more weight.

Li was 2.7 kg at birth and his mother once thought he was mal­nour­ished. But from the age of three, with sud­den surge in his ap­petite, he reached 43 kg by four. With the pas­sage of time, his weight rose, but men­tally he is at a very low level. Be­sides, he is emo­tion­ally un­sta­ble and has poor nu­mer­acy skills.

The Prader-Willi Syn­drome is a chro­mo­some No 15 ab­nor­mal­ity. About 70 per­cent of cases are due to the child’s fa­ther lack­ing the No 15 chro­mo­some. The in­ci­dence of cases is about one per ev­ery 15,000.

The clin­i­cal symp­toms of this dis­ease are com­plex. In the neona­tal pe­riod, the baby usu­ally has a poor suck­ling abil­ity. Then, when the child is around two, it de­vel­ops an in­sa­tiable ap­petite. Al­though this dis­ease can­not be cured, early de­tec­tion and treat­ment can greatly im­prove the pa­tient’s qual­ity of life.

In March, after fail­ing to ben­e­fit from var­ied weight loss regimes, Li ac­cepted par­tial gas­trec­tomy. Mean­while, obe­sity has im­pacted his life se­verely. He now has high blood pres­sure, a fatty liver, hy­pe­r­uricemia, and eight other dis­eases. To find re­lief, Li has now re­sorted to Chi­nese medicine. And through fire treat­ment, cup­ping and acupunc­ture, he has lost 16 kg in two months.

of Prader-Willi Syn­drome cases are due to the af­flicted child’s fa­ther lack­ing the No 15 chro­mo­some

Nov 20 — Li hap­pily play­ing with a wa­ter gun in a wa­ter park. It is the hap­pi­est time for him as he is away from the hos­pi­tal.

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