India Today - - GOOD NEWS - —by Sukant Deepak

SSANJANA GOYAL, 51 Pres­i­dent, In­dian As­so­ci­a­tion of Mus­cu­lar Dys­tro­phy, SOLAN


A pa­tient of mus­cu­lar dys­tro­phy, she set up Asia’s largest fa­cil­ity for oth­ers like her in Solan in 2016. an­jana Goyal, a fash­ion de­signer who runs a bou­tique on Solan’s Hos­pi­tal Road, needs help to even get up from her wheel­chair. She suf­fers from mus­cu­lar dys­tro­phy, a dis­or­der that wors­ens with time. Putting her lim­i­ta­tions be­hind her, Goyal got together with her broth­ers (who suf­fer from the same con­di­tion) and friends in 1992 to plan an out­reach for mus­cu­lar dys­tro­phy pa­tients. The In­dian As­so­ci­a­tion of Mus­cu­lar Dys­tro­phy that she es­tab­lished the same year started by hold­ing camps for pa­tients in Solan. So far, 25 camps have been held across the coun­try. Last year, Goyal set up Manav Mandir, Asia’s largest mus­cu­lar dys­tro­phy hos­pi­tal, in Solan. The 70-bed cen­tre pro­vides di­ag­nos­tic, re­ha­bil­i­ta­tion and re­search fa­cil­i­ties. In 2004, she was hon­oured with the Na­tional Award for the Wel­fare of Per­sons with Dis­abil­i­ties by the Pres­i­dent. “I have al­ways be­lieved that un­less one is vo­cal about things, noth­ing moves,” she says about her strug­gle. “Don’t ap­proach peo­ple for char­ity. Show them a solid plan and you will be sur­prised how re­cep­tive they will be.” Goyal aims to pro­vide mus­cu­lar dys­tro­phy pa­tients the best ther­apy so that they can man­age their lives bet­ter. But en­cour­ag­ing their fam­i­lies to pur­sue the ther­apy it­self is a tall task. “They don’t re­alise that reg­u­lar phys­io­ther­apy helps ar­rest the wast­ing of mus­cles.”

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