Nathan says fire­walk with me to raise aware­ness and cash for De­bra Ire­land

Fingal Independent - - NEWS -

BRAVE souls from Fin­gal who want to fire up their lives are be­ing asked to walk over hot coals for chil­dren liv­ing in chronic pain and a young man from Bally­boughal is lead­ing the way.

Ir­ish skin char­ity De­bra Ire­land is seek­ing vol­un­teers to take on their em­pow­er­ing Fire­walk chal­lenge, which takes place Dublin’s Old Wes­ley rugby club, Don­ny­brook on Mon­day Oc­to­ber 15.

Billed as the hottest event in town, fire­walk­ers take part in two hours of mo­ti­va­tional train­ing be­fore set­ting off on their short walk over three me­tres of burn­ing wood em­bers.

Nathan Fynes (17) from Bally­boughal is do­ing the De­bra’s Ire­land Fire­walk on Oc­to­ber 15 in mem­ory of his brother Aaron (16) who had se­vere EB.

Aaron sadly died 10 years ago.

‘Fire­walk­ing is truly awe­some and af­ter do­ing it you feel you can achieve what­ever you are aim­ing for in life,’ said Ju­dith Gilse­nan, Head of Fundrais­ing for De­bra Ire­land.

‘It’s an amaz­ing ex­pe­ri­ence, a chance to ig­nite your pas­sion and dis­cover what you can re­ally do.’

De­bra Ire­land sup­ports peo­ple in Ire­land liv­ing with EB (epi­der­mol­y­sis bul­losa), an in­cred­i­bly painful skin con­di­tion that causes the skin lay­ers and in­ter­nal body lin­ings to blis­ter and wound at the slight­est touch.

‘A fire­walk might sound a bit scary but it is peo­ple with EB who are the real su­per­heroes and they need our sup­port,’ said Ju­dith.

Those tak­ing part in the fire­walk are asked to pay a €50 regis­tra­tion fee and raise €200 for De­bra Ire­land.

Or­gan­is­ers say the skills learned to get peo­ple safely through a fire­walk are use­ful long af­ter the event.

‘You learn to break through your own lim­i­ta­tions and over­come your fears,’ said fire­walk­ing in­struc­tor Brian Moore.

‘By con­quer­ing the fears that are hold­ing you back you dis­cover power to achieve what you want in any area of your life, be it in your per­sonal re­la­tion­ships, in work, in busi­ness or in sport.’

Those brave enough to take up De­bra’s fire­walk­ing chal­lenge should emerge from the ex­pe­ri­ence un­scathed but in­vig­o­rated.

To reg­is­ter or find out more about De­bra’s Fire­walk chal­lenge see www.de­braire­land.org

Mean­while, Oc­to­ber 22 to 28 marks EB Aware­ness Week and the Bally­boughal fam­ily that Nathan, the heroic fire-walker comes from, is ap­peal­ing to you to get in­volved.

The Bally­boughal fam­ily who lost their teenage son to a rare and painful skin con­di­tion are ask­ing lo­cal peo­ple to help sup­port oth­ers with the dis­ease by wear­ing a spe­cial but­ter­fly tat­too in this spe­cial week.

Val and Maria Fynes’s16year-old son Aaron had a se­vere form of the ge­netic ‘but­ter­fly skin’ dis­ease EB (epi­der­mol­y­sis bul­losa).

This in­cred­i­bly painful ge­netic con­di­tion causes the skin lay­ers and in­ter­nal body lin­ings to blis­ter and wound at the slight­est touch.

One of only 300 peo­ple in Ire­land with EB Aaron had to be ban­daged al­most from head to toe to pro­tect him from ev­ery­day life.

‘When Aaron was alive, ev­ery day was an up­hill bat­tle – he was in great pain be­fore he died and 75% of his skin was miss­ing,’ said his dad Val.

‘With se­vere EB you are fight­ing some­thing you can never get ahead of.’

Oc­to­ber 22-28 is Na­tional EB Aware­ness Week and De­bra Ire­land is try­ing to fight this dev­as­tat­ing dis­ease by cre­at­ing a ‘but­ter­fly ef­fect’ dur­ing the week to raise both funds and aware­ness.

Fire­walk vol­un­teers for De­bra ire­land

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