A new life for Maia
months is mapped in a myriad ways – her whole face has changed because being able to chew her food is developing her jaw and feedback from her kindergarten reveals she has gone from just being in the class to becoming “an important part of the class”.
“At this point Maia is not yet a typical five-year-old. She is a one, two, three and four-year-old too because she’s making up all the developmental time.
“So while she understands more than she can say, she’s discovering her abilities to interact, express herself and even say no,” Mr Friedlander says.
“We’re fortunate we had the finances to send Maia to the States but not everyone could. Access to this treatment for children in New Zealand would be life-altering.”
Lifechanging: Maia Friedlander with her father and, inset, Maia the day before her life-changing procedure.