SUPPORTIVE CARE VITAL
Starship children’s hospital paediatric neurologist Claire Spooner says the condition is an abnormality in the process of the brain’s cell migration.
‘‘It affects about one in 100,000 children worldwide and about 20 Kiwi youngsters,’’ she says.
‘‘Some children remain resistant to treatment while others with a mild form are able to walk and talk.’’
Spooner says while there is no cure, supportive care is vital to maximise a child’s potential.
‘‘It’s about providing as much support as possible for the children, their families and educators.’’