Katie Nash, 26, works at St Mary’s Col­lege in Pon­sonby. She talks with about her work and living with kabuki syn­drome.

Ju­lian Raethel

Auckland City Harbour News - - NEWS -

When Katie Nash found out she had the rare con­di­tion of kabuki syn­drome at about 8 years old, she was determined not to let it run her life.

Al­most 20 years on and the Pon­sonby res­i­dent is spend­ing her time help­ing oth­ers.

Af­ter fin­ish­ing high school, Nash went on to gain her cer­tifi­cate in em­ploy­ment and com­mu­nity ed­u­ca­tion from Unitec.

She now works at St Mary’s Col­lege as a help­ing hand in the kitchen, li­brary and of­fice, and is an in­tri­cate part of the 100 staff.

‘‘I like work­ing with ex­cel­lent peo­ple,’’ the 26-year-old says. ‘‘They’re just re­ally friendly.’’ Kabuki syn­drome is a very rare con­di­tion characterised by cer­tain fa­cial fea­tures, mild to mod­er­ate in­tel­lec­tual dis­abil­ity and post­na­tal growth de­fi­ciency.

Nash says it is her pale blue eyes which are her stand-out fea­ture.

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