Endo treated like ‘taboo’

Bay of Plenty Times - - Indulge -

Con­sis­tent pain can cause chronic fa­tigue and mood swings.

Axis now man­ages her symp­toms with diet, ex­er­cise and a “suck it up” at­ti­tude, and says self care is im­por­tant. She urges other suf­fer­ers to talk about it, and ed­u­cate where pos­si­ble to help re­move the mis­un­der­tand­ing and even “shame” around the dis­ease.

Libby Wha­ley

Mount mum Libby Wha­ley agrees there is a feel­ing of taboo about women’s health and pe­ri­ods.

“Some peo­ple can feel grossed out hear­ing about it or think it should stay pri­vate and not be talked about.”

Wha­ley says she is com­fort­able shar­ing her con­di­tion with friends and fam­ily — as well as clients at the hair sa­lon she owns,

Some peo­ple can feel grossed out hear­ing about it or think it should stay pri­vate and not be talked about.

Ep­silon Hair, in which she uses prod­ucts that do not con­tain parabens and cer­tain other in­gre­di­ents as she says parabens mimic oe­stro­gen in the body and grow en­dometrio­sis tis­sue.

She too strug­gled to get a di­ag­no­sis, even when she was go­ing to a fer­til­ity clinic and de­scrib­ing her symp­toms she says she felt “brushed off”.

Af­ter suf­fer­ing symp­toms in­clud­ing pain, ir­reg­u­lar pe­ri­ods, spot­ting and strug­gling to con­ceive for more than three years, she was fi­nally re­ferred for a di­ag­nos­tic laproscopy.

“By this time it had been grow­ing for at least 3-4 years and I was rid­dled. I had to see a spe­cial­ist sur­geon and ended up los­ing a fal­lop­ian tube.”

She en­dured a sec­ond laproscopy, two months of IUI with clomiphene, three rounds of IVF with six em­bryo trans­fers — she fi­nally con­ceived and ear­lier this year in Au­gust gave birth to her daugh­ter In­digo, who they call their “mir­a­cle baby”.

Dur­ing the time of her fer­til­ity strug­gle she and her hus­band moved from Auck­land to the Mount in an at­tempt to re­duce the level of stress in their life, and started eat­ing pre­dom­i­nantly raw and or­ganic food. She also tried a treat­ment called a li­p­i­odol flush which flushes the uterus and fal­lop­ian tubes with poppy seed oil and her suc­cess­ful course of IVF was specif­i­cally de­signed for women with en­dometrio­sis.

As she is breast­feed­ing In­digo, her symp­toms are in re­mis­sion given she has no pe­ri­ods but she thinks more surgery is likely in the fu­ture.

Jen­nie Sku­lan­der

Lead singer of rock band Devil­skin, Jen­nie Sku­lan­der, gives a poignant in­sight into her per­sonal strug­gle with en­dometrio­sis in the band’s re­cent re­lease, ENDO, im­agery of a blood­ied high heel boot.

“ENDO is based on my surgery for Stage 4

Photo / Lit­tle Minx Pho­tog­ra­phy

Libby Wha­ley.

Rachel Axis.

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