The MDANZ is a not-for-profit organisation providing information and support to people affected by neuromuscular conditions.
It has four regional branches supported by the national office in Auckland.
It also funds research and helps to link Kiwis with clinical trials here and overseas.
Neuromuscular is a term that describes a variety of progressive muscle disorders, many of which are genetic and impact families.
Symptoms can appear after birth or much later in life.
They can be unpredictable, there are few treatments, cannot be cured.
To find out more, go to mda.org.nz
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A Cambridge teen will put his body on the line using pedal power to help others like him living with Muscular Dystrophy.
Nic Brockelbank is just 133cm tall and weighs 33kgs but is one of the most inspirational teenagers you will ever meet.
The 15-year-old Cambridge boy has lived over two thirds of his life in a wheelchair.
He suffers from Muscular Dystrophy but soon will swap his wheelchair for a track bike, for an hour long cycle around the Avantidrome.
He hopes the ride will raise $10,000 for New Zealand Muscular Dystrophy Association and raise awareness of the disease he’s been dealing with since birth.
The association wants to establish a trust fund to help other young people with muscular dystrophy.
Nic’s ability to inspire others was acknowledged in 2015 when he was named Junior Achiever of the Year at the national Attitude Awards.
His attitude has been far reaching and has impacted on New Zealand Muscular Dystrophy Association chief executive Ronelle Baker.
‘‘Nic’s attitude inspires me. He pushes through barriers with his mental ability to adapt to pain and fatigue,’’ said Baker.
Muscular Dystrophy affects the body’s muscular system.
Sufferers lose strength in their muscles as they get older.
Some have to learn how to use a wheelchair to move around.
‘‘Nic has never been one to give up and accept his disability,’’ said his mum Chrissie.
‘‘He wanted to give cycling a go and convinced us he was up to it.’’
He successfully, ‘‘after a few mishaps,’’ tried cycling on a stationary wind trainer and with the assistance of cycling coach Mike Bland hasn’t looked back.
‘‘I believe the cycling has really helped me to get out of my wheelchair,’’ said Nic.
His goal is to cycle as many laps of the Avantidrome in Cambridge he can within an hour.
Nic’s drive has impressed Avantidrome events and programme manager Mark Lucas.
‘‘We have provided Nic with free track time for training and The Avanti Bike Shop has set him up with a suitable bike, and cycling kit,’’ said Lucas.
Teen Nic Brockelbank trains for his fundraising ride at the Cambridge Avantidrome on March 23.