Help Amie get moving
AMIE Cuthbertson loves going on outings with her family.
But it’s getting more difficult to transport the fiveyear-old, who is severely disabled and uses a wheelchair.
The West Auckland youngster weighs 17.9kg and is getting too heavy to lift in and out of the car.
Amie is one of few to be diagnosed with a rare form of KCNQ2 de novo gene mutation. She can’t walk, talk, sit or hold her head up. She is fed through a tube and is visually impaired.
Her parents Andrea and Chris want to get their younger daughter a disability van so they can get to her medical appointments easily. And hopefully have more outings as a family.
‘‘Amie can’t help you when you lift her and it’s like carrying a newborn baby but heavier,’’ Andrea says.
‘‘Her life is challenging enough already and transporting her to the multiple hospital visits and doctor appointments with her wheelchair is just not practical with a regular family car any more,’’ she says.
A second-hand disability van is likely to cost the fam- ily at least $20,000.
They would like to get her transport that would be suit- able for her when she is older. But a larger van could cost more.
A Givealittle page has been set up to raise funds to buy a van for Amie and so far more than $8000 has been raised.
‘‘We’re very grateful for the donations. We never expected to get a lot of money towards the van and we are also working towards this ourselves but it’s hard,’’ Andrea says.
The family moved into a more suitable home to cater for Amie’s needs but her parents had to take on a higher mortgage. Andrea has gone back to work for three days a week to help with the extra housing costs and to pay for the van.
She looks after Amie when she’s not working.
‘‘Life is like a rollercoaster at times. One minute all is well with Amie and then the next she can be in hospital.
‘‘Having a disability van for her transport needs would give Amie the chance to enjoy the things we all take for granted,’’ Andrea says.
The Cuthbertson family treasure happy moments like this one with their youngest daughter Amie, 5, who is severely disabled. She is pictured with her sister Micaela, 9, left, and parents Andrea and Chris.