A road­show for hope

Kapi-Mana News - - NEWS - By KRIS DANDO

Robin Howarth sits in a room in his home hooked up to a dial­y­sis ma­chine for eight hours, ev­ery sec­ond day.

If he was not reg­u­larly con­nected by tubes to the ap­pa­ra­tus he has taken to call­ing ‘‘Stephanie’’, he might only have a mat­ter of hours to live.

The Ti­tahi Bay res­i­dent and sec­re­tary of the Welling­ton Re­gion Kid­ney So­ci­ety is one of 573 re­nal pa­tients in the Cap­i­tal and Coast District Health Board’s area. Of the 1154 re­nal pa­tients in the cen­tral part of the coun­try, 433 are re­ceiv­ing dial­y­sis, ei­ther in a unit or at home.

Mr Howarth said much of the in­for­ma­tion he had re­ceived about kid­ney dis­ease, trans­plants, be­ing on dial­y­sis at home and other im­por­tant mat­ters came from the in­for­ma­tion road­show the so­ci­ety held in 2009.

An an­nual event, it com­bines a lunch and en­ter­tain­ment with talks from doc­tors and other pro­fes­sion­als about kid­ney health.

He urges not just kid­ney pa­tients, but fam­ily mem­bers and friends to at­tend this year’s event at Pataka, in or­der to get a bet­ter un­der­stand­ing of what to ex­pect. It will be of par­tic­u­lar in­ter­est to those in the pre-dial­y­sis stage.

‘‘At last year’s [road­show] I had 90 per cent of my ques­tions an­swered on things that doc­tors

Robin Howarth, pic­tured with Welling­ton Re­gion Kid­ney So­ci­ety com­mu­nity sup­port of­fi­cer Anna Keno, sits in a re­clin­ing chair in his Ti­tahi Bay home on ‘‘dial­y­sis day’’. Some days he starts at 4am to get the or­deal over by lunchtime. tend to for­get to tell you. You will hear sto­ries about the real world, get plenty of in­for­ma­tion and meet peo­ple,’’ Mr Howarth said.

‘‘It’s a very so­cial thing and not just talk, talk, talk. It’s not just a space for re­nal pa­tients but the whole com­mu­nity, be­cause kid­ney dis­ease, and what goes with it, af­fects so many peo­ple.’’

Last year the road­show drew par­tic­i­pants from Palmer­ston North and Levin, and the so­ci­ety hopes for strong num­bers again.

Mr Howarth has had re­nal fail- ure for two years and has been on dial­y­sis for 12 months. He is com­fort­able at home these days with his fam­ily and, de­spite hav­ing to sit for eight hours straight ev­ery sec­ond day, he is able to have a life. ‘‘So many re­nal pa­tients give up, and what we want to tell them is that there is hope,’’ he said.

The road­show is from 10am till 2pm on Novem­ber 6 in the Helen Smith Room at Pataka. Among other en­ter­tain­ment, a kapa haka group will per­form, and a light lunch will be pro­vided.

Dial­y­sis day:

Newspapers in English

Newspapers from New Zealand

© PressReader. All rights reserved.