Mo­tor show high­lights MND

South Waikato News - - Your Paper, Your Place - LUKE KIRKEBY

Af­ter watch­ing mo­tor neu­rone dis­ease (MND) slowly rob his once out­go­ing daugh­ter of life a Toko­roa fa­ther is or­gan­is­ing a spe­cial mo­tor show to boost aware­ness of the de­bil­i­tat­ing dis­ease.

Neville Beale’s voice fal­tered as he re­called the strug­gle his adult daugh­ter Kerry Von­der­voort went through in her fi­nal months.

‘‘She was a bright girl and could take ev­ery­thing in but couldn’t let any­thing out. She had three and a half years of it, imag­ine your mind be­ing that clogged up,’’ he said.

It’s been four months since the mother of two, who grew up in Toko­roa, died from the dis­ease which causes nerve cells that con­trol mus­cles, en­abling move­ment, speech, swal­low­ing, and breath­ing, to die. She was just 48.

‘‘At one stage she had three part-time jobs, she kept a won­der­ful house, and she was a keen sportsper­son. She was a bloody ball of en­ergy but in the end she was just a blob in a bed or a blob in a chair and that was the cru­elest thing,’’ Beale said.

The dis­ease, which has no known cause, is un­com­mon in New Zealand af­fect­ing about one in 15,000 and most suf­fer­ers, who are mainly men, are di­ag­nosed once they are over 40 years old.

MND New Zealand hosts Walk 2 D’feet MND walkathons each year to raise money and aware­ness of the dis­ease but it still largely re­mains un­known.

See­ing what his daugh­ter went through, Beale, a long­time car en­thu­si­ast, is hop­ing to change that by or­gan­is­ing the South Waikato Vin­tage Car Club’s first ever event for char­ity.

On Satur­day, April 8 out­side South Waikato Wa­ter So­lu­tions in Camp­bell St Toko­roa from 9am un­til 2pm, about 40 vin­tage and col­lectable ve­hi­cles will gather for a spe­cial show.

‘‘For some time we had been dis­cussing that we had not done any­thing for an or­gan­i­sa­tion de­spite there be­ing so many good causes. That was as far as we got un­til my daugh­ter died so we have de­cided to put on a mo­tor show to raise money for re­search and sup­port of peo­ple liv­ing with MND,’’ he said.

‘‘It will be a gold coin do­na­tion or more to come along and we will also be giv­ing peo­ple the op­por­tu­nity to ask about MND.’’

‘‘MND New Zealand has walkathons but this is an in­di­vid­ual thing and they are ab­so­lutely rapt,’’ he said.

South Waikato Vin­tage Car Club sec­re­tary John Pat­ter­son, chair­man Peter Smit, and mem­ber Neville Beale.

Newspapers in English

Newspapers from New Zealand

© PressReader. All rights reserved.