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Mother couldn’t cuddle her baby for five months due to a rare skin condition
ADISTRAUGHT mother of two couldn’t cuddle her baby for five months, who was born without skin on her hands and feet. Rhiannon (30) and her husband, Damian Atkinson (36) from Cwmbran, South Wales, were told that their daughter, Pippa (1), had a rare skin condition called Epidermolysis Bullosa (EB), which causes the skin on her body to blister and tear when it is touched.
COULDN'T HUG HER BABY
The condition has left Pippa without 90 percent of skin on her hands and feet and the condition has since spread across her body.
Thanks to training from specialist nurses, Rhiannon now knows how to bandage and clean Pippa’s skin to reduce the risk of an infection.
“As soon as she was born, her hands and feet looked as though someone had dipped her in boiling water. They were red raw and she was whisked off to intensive care,” says Rhiannon.
“Being told your child has an incurable condition is unimaginable, it broke my heart. But then not being able to touch or cuddle her for five months was torture.”
HANDS AND FEET BANDAGED
Rhiannon and Damian stayed with Pippa in hospital for 23 days as nurses decided on the best aftercare plan for their baby.
Once Pippa was discharged from hospital, she had to have her hands permanently bandaged for four months,while her feet were bandaged for almost nine months. “When she was born, I couldn’t hold her for five months, she was always on a pillow. When we touched her, especially her hands and feet, she would scream out in pain and you could see true agony on her face.”
SLOWLY GETTING BETTER
Rhiannon gave up her banking job to take care of Pippa.
“She hasn’t started to crawl or walk yet. Because of her blisters the pressure on her knees or feet would cause her pain,” she says.
Despite Pippa’s condition covering her whole body, Rhiannon has noticed that she is getting better and they can cuddle her.
“As Pippa’s condition is genetic, I won't have any more children because of the risk.”
I WON'T HAVE ANY MORE CHILDREN