STO­RIES FROM AROUND THE WORLD

Mother couldn’t cud­dle her baby for five months due to a rare skin con­di­tion

Move! - - CONTENTS -

ADISTRAUGHT mother of two couldn’t cud­dle her baby for five months, who was born with­out skin on her hands and feet. Rhiannon (30) and her hus­band, Damian Atkin­son (36) from Cwm­bran, South Wales, were told that their daugh­ter, Pippa (1), had a rare skin con­di­tion called Epi­der­mol­y­sis Bul­losa (EB), which causes the skin on her body to blis­ter and tear when it is touched.

COULDN'T HUG HER BABY

The con­di­tion has left Pippa with­out 90 per­cent of skin on her hands and feet and the con­di­tion has since spread across her body.

Thanks to train­ing from spe­cial­ist nurses, Rhiannon now knows how to ban­dage and clean Pippa’s skin to re­duce the risk of an in­fec­tion.

“As soon as she was born, her hands and feet looked as though some­one had dipped her in boil­ing wa­ter. They were red raw and she was whisked off to in­ten­sive care,” says Rhiannon.

“Be­ing told your child has an in­cur­able con­di­tion is unimag­in­able, it broke my heart. But then not be­ing able to touch or cud­dle her for five months was tor­ture.”

HANDS AND FEET BANDAGED

Rhiannon and Damian stayed with Pippa in hospi­tal for 23 days as nurses de­cided on the best af­ter­care plan for their baby.

Once Pippa was dis­charged from hospi­tal, she had to have her hands per­ma­nently bandaged for four months,while her feet were bandaged for al­most nine months. “When she was born, I couldn’t hold her for five months, she was al­ways on a pil­low. When we touched her, es­pe­cially her hands and feet, she would scream out in pain and you could see true agony on her face.”

SLOWLY GET­TING BET­TER

Rhiannon gave up her bank­ing job to take care of Pippa.

“She hasn’t started to crawl or walk yet. Be­cause of her blis­ters the pres­sure on her knees or feet would cause her pain,” she says.

De­spite Pippa’s con­di­tion cov­er­ing her whole body, Rhiannon has no­ticed that she is get­ting bet­ter and they can cud­dle her.

“As Pippa’s con­di­tion is ge­netic, I won't have any more chil­dren be­cause of the risk.”

I WON'T HAVE ANY MORE CHIL­DREN

Newspapers in English

Newspapers from South Africa

© PressReader. All rights reserved.