10 surreylive.news NEWS & MAIL WEDNESDAY, JULY 29, 2020 News Soldier’s barefoot trek a major feet for charity “I just really want to get to £400k. I don’t enjoy these physical challenges, I’m not some type of endurance athlete. I’m just a dad trying to do his best for his little girl,” he said. Mr Brannigan visited Basingstoke A&E on Sunday last week to get a quick check-up on his tired feet after completing 14 days of walking. He said: “My feet were really swollen overnight and I had some blisters, so to be safe and to make sure everything was alright, I just popped into Basingstoke A&E. They were amazing, they had a look at it and said everything was okay.” He added: “Since we started this, we were really nervous about putting our family story out. We are really private people, but the support we have had has been incredible – people have been wonderful, so generous with time, sharing [Facebook] posts. Particularly in the rare disease community, I’ve had people who have driven two to three hours just to walk with me as they have had a family member who has been affected by a rare disease.” Mr Brannigan is urging the government to deliver a comprehensive, modern and measurable rare disease framework before the end of the year. He hopes to complete his barefoot march in Edinburgh on August 10. A DETERMINED army officer and West Byfleet father is taking mammoth steps to raise awareness of his daughter’s rare disease. Major Chris Brannigan is part-way through an incredible 700-mile journey from Land’s End to Edinburgh, carrying 25kg, all while walking barefoot. He hopes to raise muchneeded funds for gene therapy to change his daughter Hasti’s fate. Hasti, eight, was diagnosed in May 2018 with Cornelia de Lange Syndrome (CDLS), a rare genetic disorder usually caused by a mutation in a developmental gene. Her symptoms include feeding problems, speech and language difficulties and texture aversion. It has left Hasti with a growth hormone deficiency, so she is much shorter than her peers. She did not take her first steps until she was two and said her first word aged three. Mr Brannigan’s route took him through Hook, Hartley Wintney, Blackwater and RMA Sandhurst. He left Sandhurst on Monday last week – day 15 of his journey – before passing through Lightwater, Chobham and then his home town of West Byfleet, on his way to Scotland. The 39-year-old said: “My feet are pretty sore. I must have done about 300 miles or very close. It is going really well. People have helped me Chris Brannigan with his daughter Hasti CHRIS BRANNIGAN out, bought me drinks and food and walked with me. “It is taking its toll on my body and my mind if I’m perfectly honest. It’s a lot of mileage every day. “The reason I’m doing this is to change my daughter’s life. She has a disease which, left unchecked, will get worse, and currently there are no treatment options. “Every time I want to stop, or I think I’ve had enough of this and I want to put my shoes on and walk away or get in a taxi, I just remember my daughter is not going to get better on her own.” Mr Brannigan said £400,000 is needed to pay for vital research to create a treatment for the disease, with more than £300,000 raised so far on a JustGiving page. DAD WALKS 700 MILES TO RAISE AWARENESS OF HIS DAUGHTER’S RARE DISEASE 2for 1 A GLOBAL LEADER IN HEARING CARE 1950 – 2020 A smile behind every mask on selected hearing aids* Book your FREE appointment FREEPHONE 0800 912 7831 Quote RE270720 £20 M&S GIFT CARD WHEN YOU TAKE OUR 7 DAY FREE TRIAL M&S £20 GIFT CARD *Offer valid until 31/08/2020. The quote reference must be stated at time of booking to qualify for the M&S gift card. The gift card will be sent up to 28 days following the successful completion of a trial. ✁ Call or complete your details below and we’ll give you a call to book your FREE appointment. Mr Mrs First Name: Surname: Address: Miss (Please tick) Other: Address your envelope to and post TODAY FREEPOST AMPLIFON No further address details or stamp required. Postcode: Telephone: Mobile: Email: Rated ‘Excellent’ by our customers PRINTED AND DISTRIBUTED BY PRESSREADER PressReader.com +1 604 278 4604 . ORIGINAL COPY . ORIGINAL COPY . ORIGINAL COPY . ORIGINAL COPY . ORIGINAL COPY ORIGINAL COPY COPYRIGHT AND PROTECTED BY APPLICABLE LAW
© PressReader. All rights reserved.