Run­ning to shed light on brother’s cere­bella ataxia

Con­di­tion af­fect­ing bal­ance can be mis­taken for drunk­en­ness

Buckinghamshire Advertiser - - NEWS - By Jack Abell jack.abell@trin­i­tymir­ror.com

A WOMAN whose brother has a form of cere­bral palsy is to take on a run to raise aware­ness of his con­di­tion.

Jackie Alle­mandy, 26, of Lower Road, Chal­font St Peter, will run 5km from her vil­lage to Chal­font St Giles and back, in­spired by her brother, 22-year-old David Allen.

Mr Allen, of Wheel­ers Or­chard, Chal­font St Peter, who works as a nurs­ery as­sis­tant in Che­sham Bois, suf­fers from cere­bella ataxia, which af­fects bal­ance, co­or­di­na­tion and speech.

De­spite doc­tors telling their par­ents Mr Allen would never be able to walk and would have learn­ing dis­abil­i­ties, he ran in school sports days and stopped us­ing crutches when he was 11.

Mrs Alle­mandy be­lieves it is im­por­tant that aware­ness of the con­di­tion in­creases be­cause of the prob­lems her brother has faced.

He was re­cently forced to leave a pub by bounc­ers, de­spite the fact that he had been drink­ing al­co­hol-free beer all night, be­cause his un­steady move­ments led them be­lieve he was drunk.

Mrs Alle­mandy said: “It made me think that more needs to be done to make peo­ple aware of his

to con­di­tion. David should not have to be dis­crim­i­nated against and if more peo­ple knew about cere­bella ataxia, he would not face th­ese prob­lems.

“Some­times when I am walk­ing along the street with him, peo­ple are whis­per­ing and won­der­ing what the mat­ter is, and it isn’t fair.”

She added: “I do un­der­stand the dif­fi­cul­ties for peo­ple who aren’t fa­mil­iar with his con­di­tion, but I want to make peo­ple more aware.”

Mr Allen has worked as a nurs­ery as­sis­tant at Ted­dies Nurs­ery and PreSchool in Che­sham Bois for the past three years and Mrs Alle­mandy says he loves his job.

She hopes to raise at least £300 for Ataxia UK, as well as aware­ness of the con­di­tion.

Go to http://uk.vir­gin mon­ey­giv­ing.com/David. Allen to spon­sor her.

Photo by Clive Tagg ww.buyapho­totms.co.uk

SUPPORT: Jackie Alle­mandy and her brother David Allen – Team Red

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