Archie visits Downing Street to make plea over muscular dystrophy drugs
A BOY who suffers from a severe muscle-wasting disease brought a petition signed by nearly 23,000 people to Downing Street to make his treatment available through the NHS.
Archie Hill, nine, of Nortoft Road, Chalfont St Peter, was due to be accompanied by his parents, chief executive of The Muscular Dystrophy Campaign Robert Meadowcroft and MPs Greg Mulholland and Cheryl Gillan at the event yesterday (Wednesday), after this paper went to press.
Chalfont St Peter CoE Academy pupil Archie was diagnosed with Duchenne muscular dystrophy at the age of four and since then his family have campaigned for medical research into Duchenne in the hope that one day Archie and others with the condition can be helped.
Archie’s mother Louisa Hill said: “In the spirit of remaining committed to doing something productive to help Archie, we are taking our plea to Downing Street and we thank all 22,785 people who have signed the petition so far.
“Time is of the essence for Archie and accessing treatment quickly will give him extra precious time doing what he loves most – playing with his friends
Archie Hill will be hoping Duchenne treatment drug Translarna will soon be available on the NHS and joining them on the pitch playing football for Chalfont St Peter’s under nines.”
The petition calls on the Department of Health and NHS England to ensure that Duchenne treatment drug Translarna is made available from April 1.