Archie vis­its Down­ing Street to make plea over mus­cu­lar dys­tro­phy drugs

Buckinghamshire Advertiser - - NEWS -

A BOY who suf­fers from a se­vere mus­cle-wast­ing dis­ease brought a pe­ti­tion signed by nearly 23,000 peo­ple to Down­ing Street to make his treat­ment avail­able through the NHS.

Archie Hill, nine, of Nortoft Road, Chal­font St Peter, was due to be ac­com­pa­nied by his par­ents, chief ex­ec­u­tive of The Mus­cu­lar Dys­tro­phy Cam­paign Robert Mead­owcroft and MPs Greg Mul­hol­land and Ch­eryl Gil­lan at the event yes­ter­day (Wed­nes­day), after this pa­per went to press.

Chal­font St Peter CoE Academy pupil Archie was di­ag­nosed with Duchenne mus­cu­lar dys­tro­phy at the age of four and since then his fam­ily have cam­paigned for med­i­cal re­search into Duchenne in the hope that one day Archie and oth­ers with the con­di­tion can be helped.

Archie’s mother Louisa Hill said: “In the spirit of re­main­ing com­mit­ted to do­ing some­thing pro­duc­tive to help Archie, we are tak­ing our plea to Down­ing Street and we thank all 22,785 peo­ple who have signed the pe­ti­tion so far.

“Time is of the essence for Archie and ac­cess­ing treat­ment quickly will give him ex­tra pre­cious time do­ing what he loves most – play­ing with his friends

Archie Hill will be hop­ing Duchenne treat­ment drug Translarna will soon be avail­able on the NHS and join­ing them on the pitch play­ing foot­ball for Chal­font St Peter’s un­der nines.”

The pe­ti­tion calls on the Depart­ment of Health and NHS Eng­land to en­sure that Duchenne treat­ment drug Translarna is made avail­able from April 1.


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