Archie takes fight for treatment to the top
A YOUNG football player whose battle with a muscle-wasting disease brought him to meet the Prime Minister is a step closer to receiving crucial treatment.
Archie Hill, nine, of Nortoft Road, Chalfont St Peter, who suffers from Duchenne muscular dystrophy, wrote to David Cameron in a bid to meet him and ask for his help.
The Prime Minister surprised Chalfont St Peter CoE Academy pupil Archie and his family outside 10 Downing Street as they handed in a 22,785-strong petition calling on the NHS to end delays to breakthrough drug Translarna.
Archie’s mum Louisa Hill said: “We are just so proud of Archie and absolutely thrilled the prime minister took the time to stop and speak with him.
“Archie is amazing, he has been fantastic today.
“Living with Duchenne muscular dystrophy is just so much for a nine-yearold to deal with. He knows that there is a medicine out there that could help him keep playing football for longer. That means everything to our little boy.
“There is no one in the country in a better position to do something about these delays than David Cameron. He had seen Archie’s letter and took a genuine interest in what the problems are in getting Translarna and how he might be able to help us.”
Backed by the Muscular Dystrophy Campaign, Archie was among scores of people who gathered at Westminster on Wednesday, January 14 to appeal for access to Translarna, which could help keep children with the disease walking for longer.
Archie added: “I was happy to meet the prime minister and to give him my letter. He was very nice and asked me about my football team.”
Children currently must be able to walk to be eligible for the drug. There are fears many children will miss out through losing their ability to walk before NHS England makes the drug available.
The family say the prime minister promised to look into the issues surrounding Translarna and to speak with the Secretary of State, Jeremy Hunt MP, in order to speed up access to the drug through the NHS.
There is no
one in the country in a better position to do something about these delays than David Cameron”
KNOCK KNOCK: Archie Hill outside 10 Downing Street with his petition; (left) with his family talking to David Cameron