Mum named for rais­ing aware­ness and cash for Mus­cu­lar Dys­tro­phy

Buckinghamshire Advertiser - - PRIDE OF BUCKS 2015 -

Barry Tay­lor runs a physio group for MS suf­fer­ers in Che­sham Com­mu­nity Cham­pion nom­i­nee A MOTHER who has worked tire­lessly to raise aware­ness and money for the treat­ment of Mus­cu­lar Dys­tro­phy since her son was di­ag­nosed with the ill­ness has been nom­i­nated for a Pride of Bucks award.

Louisa Hill of Chal­font St Peter has been put for­ward for the award by her mother Christine Young in recog­ni­tion of the work that she has done.

Mrs Hill’s son Archie was di­ag­nosed with Duchenne Mus­cu­lar Dys­tro­phy in 2008 at the age of three – a se­vere life lim­it­ing mus­cle wast­ing con­di­tion mak­ing it likely that those af­fected will lose the abil­ity to walk be­tween the ages of 10 and 12 with a life ex­pectancy into their mid to late 20s.

Since the di­ag­no­sis, Mrs Hill, along with hus­band Gary, has put all of her spare time into rais­ing funds for the Mus­cu­lar Dys­tro­phy Cam­paign.

To date, she has run four marathons, com­pleted the Lon­don to Brighton walk­ing chal­lenge, and ev­ery day for the past fivee years has or­gan­ised a char­ity golf day, rais­ing sev­eral thou­sand pounds.

Archie’s brother Ley­tonn raised more than £4,000 by ar­rang­ing a non­uni­form day at seven lo­cal schools.

This year, Mrs Hill has met David Cameron at 10 Down­ing Street as well as foot­baller Jack Wil­shere of Ar­se­nal and Eng­land to pro­mote the li­cens­ing of drug Translarna which can help treat the con­di­tion.

Mrs Young said: “She con­tin­ues to be an in­spi­ra­tion to both her fam­ily and friends.

“She has achieved so much but will never give up.

“She is a fan­tas­tic mother, wife and daugh­ter, gen­er­ous kind and thought­ful, of whom we are ex­ceed­ingly proud, and who will al­ways give 100 per cent to help her truly amaz­ing son Archie.”

Mrs Hill said: “I’m very touched. I’m speech­less re­ally. The fundrais­ing and the events that we’ve Com­mu­nity Cham­pion nom­i­nee

SPREAD­ING THE WORD: Louisa Hill, with hus­band Gary and son Archie, rais­ing aware­ness of Mus­cu­lar Dys­tro­phy or­gan­ised is the way that we cope. It helps us get through.

“I’m very grate­ful to have been nom­i­nated.”

To find out more about Archie’s story, go to www. ac­tion4archie.com.

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