Mum named for raising awareness and cash for Muscular Dystrophy
Barry Taylor runs a physio group for MS sufferers in Chesham Community Champion nominee A MOTHER who has worked tirelessly to raise awareness and money for the treatment of Muscular Dystrophy since her son was diagnosed with the illness has been nominated for a Pride of Bucks award.
Louisa Hill of Chalfont St Peter has been put forward for the award by her mother Christine Young in recognition of the work that she has done.
Mrs Hill’s son Archie was diagnosed with Duchenne Muscular Dystrophy in 2008 at the age of three – a severe life limiting muscle wasting condition making it likely that those affected will lose the ability to walk between the ages of 10 and 12 with a life expectancy into their mid to late 20s.
Since the diagnosis, Mrs Hill, along with husband Gary, has put all of her spare time into raising funds for the Muscular Dystrophy Campaign.
To date, she has run four marathons, completed the London to Brighton walking challenge, and every day for the past fivee years has organised a charity golf day, raising several thousand pounds.
Archie’s brother Leytonn raised more than £4,000 by arranging a nonuniform day at seven local schools.
This year, Mrs Hill has met David Cameron at 10 Downing Street as well as footballer Jack Wilshere of Arsenal and England to promote the licensing of drug Translarna which can help treat the condition.
Mrs Young said: “She continues to be an inspiration to both her family and friends.
“She has achieved so much but will never give up.
“She is a fantastic mother, wife and daughter, generous kind and thoughtful, of whom we are exceedingly proud, and who will always give 100 per cent to help her truly amazing son Archie.”
Mrs Hill said: “I’m very touched. I’m speechless really. The fundraising and the events that we’ve Community Champion nominee
SPREADING THE WORD: Louisa Hill, with husband Gary and son Archie, raising awareness of Muscular Dystrophy organised is the way that we cope. It helps us get through.
“I’m very grateful to have been nominated.”
To find out more about Archie’s story, go to www. action4archie.com.