Vol­un­teers needed for MPS so­ci­ety

Buckinghamshire Advertiser - - OPINION -

DO you live in Bucks and would you like to vol­un­teer and take part in a re­ward­ing and un­for­get­table ex­pe­ri­ence?

The MPS So­ci­ety sup­ports the fam­i­lies of chil­dren and young adults who suf­fer from one of 25 de­gen­er­a­tive ge­netic con­di­tions, known col­lec­tively as Mu­copolysac­cha­ride and re­lated dis­eases. Be­cause of the rar­ity of MPS dis­eases, fam­i­lies with an af­fected child of­ten feel iso­lated and strug­gle to ac­cess the help they need to cope with car­ing for a se­verely dis­abled child with com­plex prob­lems.

Th­ese fam­i­lies ben­e­fit hugely from com­ing to our na­tional con­fer­ence held in Coven­try in June, where they can gain vi­tal knowl­edge on dis­ease man­age­ment and the lat­est re­search up­dates from med­i­cal ex­perts, and ben­e­fit from prac­ti­cal ad­vice and sup­port from other fam­i­lies living with the dev­as­tat­ing ef­fects of th­ese dis­eases.

We are cur­rently look­ing for vol­un­teers that we will pro­vide to each fam­ily for this week­end. Each vol­un­teer will be spe­cially trained to meet their child’s in­di­vid­ual care needs and en­sure that they en­joy some much needed fun and friend­ship.

Our tai­lored child­care pro­gramme dur­ing the week­end will be able to give some of th­ese chil­dren and their sib­lings a fun packed week­end, while their par­ents and fam­i­lies learn more about all as­pects of life with th­ese con­di­tions.

If you think you can help please con­tact us at mps@mpsso­ci­ety.org. uk or call us on 03453 899901.

CHRISTINE LAV­ERY MBE Chief Ex­ec­u­tive MPS So­ci­ety

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