Keep­ing up the fight for Archie

Mum rais­ing funds and aware­ness for mus­cu­lar dys­tro­phy

Buckinghamshire Advertiser - - NEWS - By Tom Herbert tom.herbert@trin­i­tymir­

A FAM­ILY con­tinue to do ev­ery­thing they can to raise aware­ness of Duchenne mus­cu­lar dys­tro­phy for their young son who suf­fers from the se­vere mus­cle wast­ing dis­ease.

Louisa and Gary Hill have been ac­tive this au­tumn tak­ing part in, and ar­rang­ing, a num­ber of events on be­half of their youngest son Archie who was di­ag­nosed with mus­cu­lar dys­tro­phy in 2008 at the age of three.

On Fri­day Septem­ber 5 the fam­ily held their an­nual golf day at Moor Park Golf Club, Hert­ford­shire, which raised ‘about £19,000’ and was de­scribed as ‘fan­tas­tic’ by Mrs Hill.

And this week­end Mrs Hill took part in the 100k Thames Path Chal­lenge, an event in which she pushed her­self so hard she passed out when she got home and her hus­band had to call the paramedics out.

Speak­ing about the golf day Mrs Hill said: “It was the best we had. There was a fan­tas­tic turn out.

“I did a speech this year which was very emo­tional. I made lots of grown men cry. It was nice to be able to say my story. I said it from the heart.”

She added: “The most emo­tional bit of the day was when they gave the mi­cro­phone to Archie. He said, ‘I just want to thank all of you for com­ing and sup­port­ing me’, and he got a stand­ing ova­tion and there wasn’t a dry eye in the house at that time.”

The Thames Path Chal­lenge that she took part in on Satur­day with friends Michelle Bond, Tr­isha Duffy and Becky Saun­ders was de­scribed as ‘one of the hard­est things I’ve ever done’.

Start­ing from Put­ney bridge, the route took Mrs Hill along the river Thames to Hen­ley in Ox­ford­shire.

As soon as she fin­ished the walk on Sun­day morn­ing, she rushed off to see her eldest son Ley­ton play football in his first match of the sea­son.

But when she got home, her hus­band Gary Hill said she passed out, ‘smashed her head against the ra­di­a­tor’ and he had to call the paramedics out

Mrs Hill said: “This is what I do. I push my­self to the lim­its for the boys.”

She added: “Half way through my legs were so achy and tired and I thought to my­self this is how those boys must feel all the time.

“But there was no way I was go­ing to give up.”

Mrs Hill said: “I do it for all the boys.”

And added: “I want to make a dif­fer­ence.”

PUSHED TO THE LIMIT: Louisa Hill and her fam­ily have been tak­ing part in and ar­rang­ing a num­ber of events this au­tumn for char­ity ac­tion4archie, to raise aware­ness of Duchenne mus­cu­lar dys­tro­phy, a se­vere mus­cle wast­ing dis­ease her son Archie, pic­tured above and be­low, suf­fers from

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