“HE SHOULD BE AN INSPIRATION FOR ALL CHILDREN”
Boy campaigned for muscular dystrophy drug to be made available
10 year old campaigner Archie, receives national award at House of Commons after petitioning Prime Minister
A TEN-YEAR-OLD was rewarded for his tireless campaigning work at a House of Commons ceremony on Monday night.
Archie Hill, from Gerrards Cross, received the award for his work with Muscular Dystrophy UK to allow access to drug Translarna.
Translarna is a drug which could allow boys like Archie – who suffers from Duchenne muscular dystrophy – to walk for longer.
Nominated by Chesham and Amersham MP Cheryl Gillan, he was awarded most inspirational campaigner on youth issues at the Kids Count Inspiration Awards Ceremony.
In January, Archie visited 10 Downing Street, meeting the Prime Minister to present a petition – signed by more than 22,000 people – calling for access to the drug.
He was one of six boys who delivered handwritten letters to David Cameron in June, in a further plea for a positive decision on whether the NHS would approve funding for the drug.
Archie’s story and determination has been an inspiration to people, including England and Arsenal footballer Jack Wilshere, who has since become an ambassador for Muscular Dystrophy UK.
Speaking about his award, Archie said: “I’m really happy to receive this award. I don’t just do this for me, I do it to help all the boys with Duchenne. I just want to keep playing with my friends in the playground at school.”
Mrs Gillan said: “Having met and campaigned alongside Archie and his family, I thought instantly of him when I learned of these awards and nominated him. He is a very worthy winner. This fantastic young man has been a tireless champion for children with Duchenne muscular dystrophy.
“He should be an inspiration for all children for his determination and efforts despite his own condition.”
Robert Meadowcroft, chief executive of Muscular Dystrophy UK, said: “We are proud Archie has been recognised with this award. Speaking up can be a very hard thing to do, particularly at such a young age.
“From writing to the Prime Minister, to being interviewed on national television, Archie has had thecourageandconfidence to tell people about a difficult challenge in his life. Archie is wholly deserving of this award.”
Despite his mobility worsening as he gets older, Archie never gives up on his campaigning efforts.
Muscular Dystrophy UK supports the 70,000 people in the UK affected by muscle-wasting conditions and their families, as well as funding groundbreaking research into treatments.
Inspirational: Archie Hill, from Gerrards Cross, received a national award at
a House of Commons award ceremony