Kids take up call to help twins in need
‘So proud’ of young parishioners who fundraised
Emerson and Marcia Lee from Great Missenden were born after just 25 weeks of pregnancy and were in hospital for the first nine months of their lives.
They both have quadriplegic cerebral palsy and their muscle tone changes from day to day, ranging from very tight and inflexible, to floppy and loose.
This means what they are able to do changes too, although they are not able to do anything for themselves.
Although Emerson and Marcia cannot speak, they communicate with their eyes. They are both full time wheelchair users and although they have supportive seating to keep them safe when they are eating, the seats are uncomfortable to sit in for any length of time, but there is no statutory funding available for alternative seating.
Both children attend a special residential school where they can sit comfortably, but without specialist seating while they are at home during weekends and school holidays with their parents, Jane and Michael and seven-year-old brother Jake, they have no way of really relaxing.
However, as each specialist seat costs £2,345, mum Jane contacted the Newlife Foundation for Disabled Children, the UK’s largest charity provider of specialist equipment for children with disabilities and terminal illness.
Afterthecharitylaunched an appeal to raise the funds for the seating, Newlife supporter Elly Hance began fundraising with children from Holy Trinity Church in Deanshanger, raising £2,592.
Activities included selling sweet treats and her accessories and a Brownie sing-a-thon.
One nine-yearold member of the congregation, Kerenza Willis, even put her best foot forward and completed a sponsored walk to raise money.
Ms Hance said: “I’ve been overwhelmed by the generosity of the community, but most of all the enthusiasm shown by the children of Holy Trinity church to want to make a difference. These children are the future, what an example. We are so proud of them.”
Emerson and Marcia’s mum, Jane, said: “It was amazing that people would help raise the money for the chairs Marcia and Emerson needed – and to be able to have them just in time for Christmas was great.
“Although Emerson and Marcia don’t speak, I think they really like them. Now if we watch a film, we can all sit together and relax and I know that they are comfortable. It gives them more options and it’s nice for them to be able to have another seat and have a different position to be in.”
Newlife has provided specialist equipment for 144 children in Buckinghamshire, with a total cost of £197,870.
However, the charity is currently working with a further eight families, with combined equipment needs of £9,249.
If you would like to help a disabled child in your area visit www.newlifecharity. co.uk/buckinghamshire and click on the donate button.
Marcia and Emerson Lee in their chairs