Buckinghamshire Advertiser - - NEWYEAR’S HONOURS -

A WOMAN who lost her seven-year-old niece to a brain tu­mour in 2001 has been made an MBE.

Sue Far­ring­ton Smith has been awarded the hon­our for ser­vices to brain tu­mour re­search and rais­ing aware­ness.

Sue, 59, from Pad­bury, co-founded the char­ity Ali’s Dream with fam­ily and friends to raise funds for child­hood brain tu­mour re­search.

With the sup­port of MP John Ber­cow she also es­tab­lished the all party par­lia­men­tary group on brain tu­mours in July 2005.

In April 2009, Ali’s Dream and other found­ing brain tu­mour char­i­ties came to­gether and launched Brain Tu­mour Re­search, of which Sue now chief ex­ec­u­tive.

The char­ity is now a multi-mil­lion-pound or­gan­i­sa­tion and has es­tab­lished four re­search cen­tres of ex­cel­lence across the coun­try.

Sue has co-au­thored three re­ports into na­tional re­search fund­ing, pro­duced the In­vest In A Cure man­i­festo and launched the char­ity’s an­nual Wear A Hat Day.

She said: “I cried when I heard the news. It is such a great hon­our.

“It made me re­alise the enor­mity of what has been achieved in the last 15 years.

“My pas­sion for this cause is driven by loss. Not a day goes by when I don’t think about Ali [Ali­son Phe­lan, her niece].

“See­ing the dev­as­ta­tion of her par­ents Julie and Gary, be­cause they couldn’t save their lit­tle girl, drove me to try to make a dif­fer­ence.

“I was so proud and hum­bled by Julie and Gary that they wanted to start Ali’s Dream.

“There are no words to de­scribe how the loss of a child shat­ters a fam­ily.

“I still feel the pain of los­ing her and wit­ness­ing the con­tin­u­ing pain of my sis­ter and her fam­ily makes me feel so help­less, despite ev­ery achieve­ment and mile­stone we reach as a char­ity.

“With a back­ground in the cor­po­rate world, I pledged the rest of my life’s work to find­ing a cure.

“There are so many peo­ple who have been with me and Ali’s fam­ily and friends on this jour­ney, in­clud­ing my hugely sup­port­ive hus­band and chil­dren.

“I am par­tic­u­larly hum­bled by the brav­ery and ded­i­ca­tion of Wendy Fulcher, Sandy Saun­ders and Nigel Bout­wood, trustees of Brain Tu­mour Re­search.”

Visit www. brain­tu­mour­re­search. org,­is­dream. or www. justgiv­ for more in­for­ma­tion.

‘Great hon­our’: Sue Far­ring­ton Smith

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