Brave Ni­cole’s bat­tle to take CF su­per pill

Daily Express - - News - By Chris Riches

GRAVELY ill Ni­cole Adams vowed yes­ter­day to get well enough to take her cys­tic fi­bro­sis won­der drugs by Christ­mas.

The Daily Ex­press is urg­ing drug maker Ver­tex and doc­tors to help Ni­cole ac­cess CF drug Symkevi, or the stronger Trikafta pill.

At best, Ni­cole, 28, has only a 20 per cent lung func­tion, but flu saw it plunge to just 13 per cent, leav­ing her on 24-hour oxy­gen and barely able to move.

A fort­night ago, Ni­cole rang the Daily Ex­press in tears from hos­pi­tal, say­ing: “I’m so scared – I’m dy­ing.What can I do?”

Last week she was so ill, doc­tors sug­gested she go on life sup­port, which she bravely re­fused.

The next day she re­moved her oxy­gen mask to sing five sec­onds of the song I’m Still Stand­ing.

Yes­ter­day, a food tube was in­serted into her stom­ach be­cause she is los­ing so much weight.

Belfast City Hos­pi­tal now has Ni­cole’s Symkevi pills, but doc­tors want her to sta­bilise first.

Ni­cole, from New­town­abbey,

Co Antrim, said: “Thank you all for be­ing so strong when I’m weak! I hope I can do this for all of you.”

In Oc­to­ber, a Daily Ex­press cru­sade fi­nally saw NHS deals struck for CF pills Orkambi and Symkevi across the UK.

But Trikafta is avail­able only for med­i­cal tri­als or com­pas­sion­ate use.

Ni­cole has not yet been given Trikafta com­pas­sion­ately, as we un­der­stand that Ver­tex is pri­ori­tis­ing it for pa­tients un­able to take Orkambi and Symkevi.

Belfast City Hos­pi­tal said: “We can­not com­ment on the treat­ment of in­di­vid­ual pa­tients.”

Ail­ing...CF suf­ferer Ni­cole yes­ter­day

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