Brave Nicole’s battle to take CF super pill
GRAVELY ill Nicole Adams vowed yesterday to get well enough to take her cystic fibrosis wonder drugs by Christmas.
The Daily Express is urging drug maker Vertex and doctors to help Nicole access CF drug Symkevi, or the stronger Trikafta pill.
At best, Nicole, 28, has only a 20 per cent lung function, but flu saw it plunge to just 13 per cent, leaving her on 24-hour oxygen and barely able to move.
A fortnight ago, Nicole rang the Daily Express in tears from hospital, saying: “I’m so scared – I’m dying.What can I do?”
Last week she was so ill, doctors suggested she go on life support, which she bravely refused.
The next day she removed her oxygen mask to sing five seconds of the song I’m Still Standing.
Yesterday, a food tube was inserted into her stomach because she is losing so much weight.
Belfast City Hospital now has Nicole’s Symkevi pills, but doctors want her to stabilise first.
Nicole, from Newtownabbey,
Co Antrim, said: “Thank you all for being so strong when I’m weak! I hope I can do this for all of you.”
In October, a Daily Express crusade finally saw NHS deals struck for CF pills Orkambi and Symkevi across the UK.
But Trikafta is available only for medical trials or compassionate use.
Nicole has not yet been given Trikafta compassionately, as we understand that Vertex is prioritising it for patients unable to take Orkambi and Symkevi.
Belfast City Hospital said: “We cannot comment on the treatment of individual patients.”
Ailing...CF sufferer Nicole yesterday