SEARCHING FOR A CURE
When BBC Look East stories get a big response on social media you know you have hit a nerve. A few weeks ago we led the programme with a report on ME, or Chronic Fatigue Syndrome, and I tweeted about it. My twitter feed was alight for days and days afterwards.
Exactly the same thing had happened when I did an interview on ME a year earlier.
I think this shows two things: first, there are an awful lot of people living with the illness – either openly or behind closed doors. Second, there’s hardly any media coverage of it, so sufferers feel forgotten and misunderstood.
Groundbreaking research is being carried out into ME at the Institute of Food Research in Norwich, and the Science Park is to become an international centre for studies into the cause of the illness. It’s also hoping to trial a cancer drug which has been shown to help patients with ME in Norway.
A lot of the research is being crowdfunded by people with ME – some are unable to get out of bed, but still fundraise on their laptops. They are working so hard to find themselves a cure. I so hope they get the answers they’re looking for.