Raise awareness of invisible illness
MY NAME is Charlotte, though I am commonly known on the internet as ‘Lottie’.
I have a chronic illness called Elhers Danlos Syndrome (EDS) which has now gone to a debilitating state in such a short space of time.
My life was flipped around in February 2014 when my illness became rapidly worse and forced me to quit my job and into a wheelchair and the use of walking aids. On explaining my condition to people, nobody ever knows what it is and it can be hard to explain chronic pain and about my illness to people when they are totally unaware of it.
My condition is also invisible, so to the naked eye no one would know what is wrong with me, and I also get lots of funny looks and remarks when I am in my wheelchair, or if I am walking funny.
I think in this day and age people can become quite ignorant to people with disabilities and very judgemental. It also shocked me how unaware people are of chronic illness and especially mine, where not even some doctors know what my condition is! I saw the chance to use my disability to start raising awareness for chronic illnesses and mine in particular.
I currently write a blog about my daily life and I also make YouTube Vlogs.
I live in West Drayton, and Uxbridge used to be my favourite place to go – now it has become my least favourite, due to the lack of understanding from the public of my invisible illness.
I feel like people stare at you as they are so unaware of invisible illnesses and how they can affect your daily lives.
People see this young girl in a wheelchair, with what seems like nothing is wrong and they can become quite confused by that.
It is my aim to raise as much awareness as possible and I would love if you could help me on my journey to raise awareness for EDS.
You can have a look at my blog and my Youtube Vlogs. I also have a Twitter account where I stay most connected to people. CHARLOTTE RIGG Chapman Close
West Drayton www.edslottie.com youtube.com/edslottie