Raise aware­ness of in­vis­i­ble ill­ness

Harefield Gazette - - OPINION -

MY NAME is Char­lotte, though I am com­monly known on the in­ter­net as ‘Lot­tie’.

I have a chronic ill­ness called El­hers Dan­los Syn­drome (EDS) which has now gone to a de­bil­i­tat­ing state in such a short space of time.

My life was flipped around in Fe­bru­ary 2014 when my ill­ness be­came rapidly worse and forced me to quit my job and into a wheel­chair and the use of walk­ing aids. On ex­plain­ing my con­di­tion to peo­ple, no­body ever knows what it is and it can be hard to ex­plain chronic pain and about my ill­ness to peo­ple when they are to­tally un­aware of it.

My con­di­tion is also in­vis­i­ble, so to the naked eye no one would know what is wrong with me, and I also get lots of funny looks and re­marks when I am in my wheel­chair, or if I am walk­ing funny.

I think in this day and age peo­ple can be­come quite ig­no­rant to peo­ple with dis­abil­i­ties and very judge­men­tal. It also shocked me how un­aware peo­ple are of chronic ill­ness and es­pe­cially mine, where not even some doc­tors know what my con­di­tion is! I saw the chance to use my dis­abil­ity to start rais­ing aware­ness for chronic ill­nesses and mine in par­tic­u­lar.

I cur­rently write a blog about my daily life and I also make YouTube Vlogs.

I live in West Dray­ton, and Uxbridge used to be my favourite place to go – now it has be­come my least favourite, due to the lack of un­der­stand­ing from the pub­lic of my in­vis­i­ble ill­ness.

I feel like peo­ple stare at you as they are so un­aware of in­vis­i­ble ill­nesses and how they can af­fect your daily lives.

Peo­ple see this young girl in a wheel­chair, with what seems like noth­ing is wrong and they can be­come quite con­fused by that.

It is my aim to raise as much aware­ness as pos­si­ble and I would love if you could help me on my jour­ney to raise aware­ness for EDS.

You can have a look at my blog and my Youtube Vlogs. I also have a Twit­ter ac­count where I stay most con­nected to peo­ple. CHAR­LOTTE RIGG Chap­man Close

West Dray­ton www.ed­slot­tie.com youtube.com/ed­slot­tie

@ed­slot­tie

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