THE mum of toddler Oliver Joyce, who died of a rare ‘brainshrinking’ illness, will keep his memory by helping other children.
Oliver died aged three, on April 23 this year.
His mum Amie Finch wants to keep his memory alive by marking what would be his fourth birthday on November 8 and poignantly by releasing yellow and blue balloons at 2pm outside the children’s ward at Hillingdon Hospital.
Ms Finch, who works as a carer at an old people’s home, said: “Peter Pan Ward was where Oliver spent half of his life and I know how uncomfortable it can be for some parents there and how difficult it is to entertain children sometimes. Really the idea is to ease it a little bit for them and keep the memory of Oliver going and also to raise awareness of the disabled children in Hillingdon as I don’t feel there’s enough support for families in the area.
“Eventually I’d like to create a registered charity so I’m keeping Oliver’s memory alive whilst I’m trying to do that.”
Oliver was born with Olivopontocerebellar atrophy (OPCA). At eight-months-old, he became the only child in England to be diagnosed with the disorder, which has no known cure. Oliver’s mother is asking for donations of shoeboxes filled with toys, books or games for children, to donate to the Peter Pan and Wendy ward.
To donate a shoebox, search for ‘Oliver Joyce’ on Facebook to ‘Like’ the page.