Rare con­di­tion

Kentish Express Ashford & District - - Helping Others -

Sturge-We­ber Syn­drome oc­curs ran­domly in preg­nancy and is usu­ally de­tected through a ‘portwine stain’, or birth­mark, on the baby’s fore­head or scalp.

It af­fects the skin, brain and eyes and can also in­volve an ex­tra layer of blood ves­sels over the sur­face of the brain, which can cause con­vul­sions, de­vel­op­men­tal prob­lems, glau­coma and weak­ness down one side of the body.

There are three types of the con­di­tion, with type 3 – the one Sam was di­ag­nosed with – be­ing the rarest due to a lack of a tell-tale birth­mark on the head.

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