Young mum loses battle with illness
TRIBUTES have been paid to a loving young mum who died while waiting for a double lung transplant.
Tragically, Naomi Hulme, 22, died just a week after sharing her story in the Macclesfield Express.
Naomi, who is mum to four-year-old Leo, had lived with cystic fibrosis since being diagnosed with the genetic condition when she was just two years old.
She was due to go on the waiting list for a new pair of lungs when her condition rapidly deteriorated in the last few months. But she lost her battle with the illness before a successful match could be found.
Naomi, of Knights Close, Macclesfield, died peacefully at Wythen- shawe Hospital on Thursday, October 16, with her family by her bedside.
Her mum, Jackie, said: “Naomi’s life was her fouryear-old son, Leo.
“He was her everything and everything she did in her life was for him.
“She adored him so much and all she ever wanted to do is be with him. All she wanted was to have a normal life with Leo.
“She was a bubbly, out- going, wonderful girl who was taken from us far too soon.
“She was beautiful inside and out and was very, very popular.
“I knew she was well liked but not to the extent that have found out since her death. Flowers, cards and messages have flooded in from so many people. The family are all devastated, her death has come as a huge shock and our lives will never be the same again. The doctors were very surprised at what has happened.
“She grew up refusing to let the disease decide how she lived.”
Jackie said: “She hated having the disease but she never let it get on top of her until it worsened when she was 18. After that, things were harder for her and she was in hospital more regularly.
“Until she was 16 she
Ihad always danced, taking part in competitions all around the UK and even as far as Malta. She won hundreds of trophies and took to it straight away. In fact, it helped her condition as it would clear her lungs.”
In 2005 the former Tytherington and Puss Bank School pupil was nominated for a ‘breathing life’ award which honours the exceptional achievements of young adults and children who have with cystic fibrosis.
She leaves her son, Leo, mum Jackie, dad Barrie, brother Ryan and his partner, Danielle, and their son Cole.
A service for Naomi will take place at St Paul’s Church, Glegg Street, Macclesfield, on Thursday, October 30, at 11am.
Anyone who would like to pay their respects is welcome to attend. The family are collecting donations which will be given to Leo’s school, Puss Bank Primary.
Jackie added: “A family friend has named a star after Naomi and so Leo is still talking to his mummy who is in the sky. feel bitter about cystic fibrosis at the moment because it has taken Naomi away from me. But Naomi will never be forgotten, and Leo will always be able to hear from us how special his mummy was.”
●● Clockwise from above: Naomi with her son Leo; At hospital with her mum, Jackie, dad, Barrie, and Leo; How the Express featured Naomi’s plea for a donor just three weeks ago