Young mum loses bat­tle with ill­ness

Macclesfield Express - - MP IN TALKS OVER CARE HOME FUTURE - ALEX HIB­BERT

TRIB­UTES have been paid to a loving young mum who died while wait­ing for a dou­ble lung trans­plant.

Trag­i­cally, Naomi Hulme, 22, died just a week after shar­ing her story in the Mac­cles­field Ex­press.

Naomi, who is mum to four-year-old Leo, had lived with cys­tic fi­bro­sis since be­ing di­ag­nosed with the ge­netic con­di­tion when she was just two years old.

She was due to go on the wait­ing list for a new pair of lungs when her con­di­tion rapidly de­te­ri­o­rated in the last few months. But she lost her bat­tle with the ill­ness be­fore a suc­cess­ful match could be found.

Naomi, of Knights Close, Mac­cles­field, died peace­fully at Wythen- shawe Hos­pi­tal on Thurs­day, Oc­to­ber 16, with her fam­ily by her bed­side.

Her mum, Jackie, said: “Naomi’s life was her fouryear-old son, Leo.

“He was her ev­ery­thing and ev­ery­thing she did in her life was for him.

“She adored him so much and all she ever wanted to do is be with him. All she wanted was to have a nor­mal life with Leo.

“She was a bub­bly, out- go­ing, won­der­ful girl who was taken from us far too soon.

“She was beau­ti­ful inside and out and was very, very popular.

“I knew she was well liked but not to the ex­tent that have found out since her death. Flow­ers, cards and mes­sages have flooded in from so many peo­ple. The fam­ily are all dev­as­tated, her death has come as a huge shock and our lives will never be the same again. The doc­tors were very sur­prised at what has hap­pened.

“She grew up re­fus­ing to let the dis­ease de­cide how she lived.”

Jackie said: “She hated hav­ing the dis­ease but she never let it get on top of her un­til it wors­ened when she was 18. After that, things were harder for her and she was in hos­pi­tal more reg­u­larly.

“Un­til she was 16 she

Ihad al­ways danced, tak­ing part in com­pe­ti­tions all around the UK and even as far as Malta. She won hun­dreds of tro­phies and took to it straight away. In fact, it helped her con­di­tion as it would clear her lungs.”

In 2005 the for­mer Tyther­ing­ton and Puss Bank School pupil was nom­i­nated for a ‘breath­ing life’ award which hon­ours the ex­cep­tional achieve­ments of young adults and chil­dren who have with cys­tic fi­bro­sis.

She leaves her son, Leo, mum Jackie, dad Bar­rie, brother Ryan and his part­ner, Danielle, and their son Cole.

A ser­vice for Naomi will take place at St Paul’s Church, Glegg Street, Mac­cles­field, on Thurs­day, Oc­to­ber 30, at 11am.

Any­one who would like to pay their re­spects is wel­come to at­tend. The fam­ily are col­lect­ing do­na­tions which will be given to Leo’s school, Puss Bank Pri­mary.

Jackie added: “A fam­ily friend has named a star after Naomi and so Leo is still talk­ing to his mummy who is in the sky. feel bit­ter about cys­tic fi­bro­sis at the mo­ment be­cause it has taken Naomi away from me. But Naomi will never be for­got­ten, and Leo will al­ways be able to hear from us how spe­cial his mummy was.”

I

●● Clock­wise from above: Naomi with her son Leo; At hos­pi­tal with her mum, Jackie, dad, Bar­rie, and Leo; How the Ex­press fea­tured Naomi’s plea for a donor just three weeks ago

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