Cou­ple’s agony as sec­ond child also has fa­tal ill­ness

Macclesfield Express - - FRONT PAGE - STU­ART GREER

ACOU­PLE have suf­fered fresh heartache af­ter learn­ing a sec­ond of their chil­dren has a fa­tal ill­ness.

Lucy and Mike Car­roll’s lives were left dev­as­tated in Fe­bru­ary when doc­tors di­ag­nosed their four-yearold Ollie with Late In­fan­tile Bat­ten Dis­ease.

Now the cou­ple, from Poyn­ton, have been told their two-year-old daugh­ter Amelia also has the de­gen­er­a­tive con­di­tion.

The con­di­tion causes chil­dren to lose their speech, mo­bil­ity and eye­sight as they get older, and many suf­fer­ers do not sur- vive past the age of 12.

Lucy, 29, said the fam­ily were strug­gling to come to terms with the lat­est blow. She said: “I don’t even know how to de­scribe the pain that we are feel­ing right now.

“Amelia has just turned two – we thought she would have the rest of her life in front of her. I have dreamed of tak­ing her to ballet class, of do­ing our nails, hair and make-up to­gether, talk­ing about boys, see­ing her get mar­ried be­ing there when she had her own baby. All of this will never hap­pen.

“Amelia is a happy lit­tle girl, she is full of life. It is so painful to look at her and know what she is go­ing to have to go through.”

Lucy and Mike, 31, who grew up in Bolling­ton, also have an anx­ious wait to test Ollie and Amelia’s two broth­ers, aged six and eight, for the dis­ease.

Lucy added: “How are my older boys ex­pected to get through this? They have to watch as their lit­tle brother be­comes more and more poorly and lose his abil­i­ties one by one un­til one day his poor body won’t be able to take any­more. They then have to watch their lit­tle sis­ter who they love so much, who they pro­tect so much, go through the ex­act same thing.”

Since shar­ing their story the Car­rolls have been buoyed by mes­sage of sup­port and pledges to fundraise to pay for re­search to find a cure to the dis­ease.

The cou­ple have pledged to make ev­ery mo­ment count for their chil­dren and con­tinue their so­cial me­dia cam­paign ‘Ollie’s Army’ to raise aware­ness of the con­di­tion, which af­fects only five or six chil­dren in the UK each year.

Among the fundrais­ing events is a char­ity bike ride set­ting off from Ollie’s school, Ver­non pri­mary, to Snow­don in Wales on May 2. The 11-strong group will cy­cle to the sum­mit, stay the night and then ride back to Poyn­ton.

To do­nate to the ride visit www.just­giv­ oas­now­don. For more info visit ol­

●● Mike and Lucy Car­roll with chil­dren Ollie and Amelia

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