Couple’s agony as second child also has fatal illness
ACOUPLE have suffered fresh heartache after learning a second of their children has a fatal illness.
Lucy and Mike Carroll’s lives were left devastated in February when doctors diagnosed their four-yearold Ollie with Late Infantile Batten Disease.
Now the couple, from Poynton, have been told their two-year-old daughter Amelia also has the degenerative condition.
The condition causes children to lose their speech, mobility and eyesight as they get older, and many sufferers do not sur- vive past the age of 12.
Lucy, 29, said the family were struggling to come to terms with the latest blow. She said: “I don’t even know how to describe the pain that we are feeling right now.
“Amelia has just turned two – we thought she would have the rest of her life in front of her. I have dreamed of taking her to ballet class, of doing our nails, hair and make-up together, talking about boys, seeing her get married being there when she had her own baby. All of this will never happen.
“Amelia is a happy little girl, she is full of life. It is so painful to look at her and know what she is going to have to go through.”
Lucy and Mike, 31, who grew up in Bollington, also have an anxious wait to test Ollie and Amelia’s two brothers, aged six and eight, for the disease.
Lucy added: “How are my older boys expected to get through this? They have to watch as their little brother becomes more and more poorly and lose his abilities one by one until one day his poor body won’t be able to take anymore. They then have to watch their little sister who they love so much, who they protect so much, go through the exact same thing.”
Since sharing their story the Carrolls have been buoyed by message of support and pledges to fundraise to pay for research to find a cure to the disease.
The couple have pledged to make every moment count for their children and continue their social media campaign ‘Ollie’s Army’ to raise awareness of the condition, which affects only five or six children in the UK each year.
Among the fundraising events is a charity bike ride setting off from Ollie’s school, Vernon primary, to Snowdon in Wales on May 2. The 11-strong group will cycle to the summit, stay the night and then ride back to Poynton.
To donate to the ride visit www.justgiving.com/ oasnowdon. For more info visit olliesarmy.co.uk.
●● Mike and Lucy Carroll with children Ollie and Amelia