Family of tragic tots appeal for support
THE family of two children with a fatal disease are calling for people to use social media this Friday to raise awareness of the condition.
Ollie and Amelia Carroll, from Poynton, have been diagnosed with the Late Infantile Battens Disease.
The rare genetic condition is degenerative and there is no cure.
This Friday, June 5, is Battens Disease awareness day.
The family and supporters of Ollie, four, and Amelia, two, want everyone on social media to get involved by changing their Facebook profiles and sharing their support.
Emma Scarf, the children’s aunt, said: “We want to help turn social media orange leading up to Battens Awareness day.
“It’s so easy to help raise awareness, just take a selfie with a sign and make it your profile pic or upload the artwork provided by the BDFA, the charity supporting families with Battens.
“You can also show your support by wearing orange.
“There are so many people who have never heard of Battens Disease. You can be the one to tell them and help us raise awareness.”
Ollie and Amelia will lose their speech, mobility and eyesight as they get older and are unlikely to survive past the age of 12.
Their parents Lucy and Mike have pledged to make every moment count for their children and continue their social media campaign ‘Ollie’s Army’ to raise awareness of the condition which affects only five or six children in the UK each year.
Their plight has seen a wave of support from the community with thousands of pounds raised in their name to fund research into a cure.
Celebrities and top sports stars have also supported the Ollie’s Army campaign by wearing special red or pink wrist bands.
●● Volunteers have raised more than £2,000 with the family fun day at the Mulberry Bush pub