Fam­ily of tragic tots ap­peal for sup­port

Macclesfield Express - - CHARITY ROUND-UP -

THE fam­ily of two chil­dren with a fa­tal dis­ease are call­ing for peo­ple to use so­cial me­dia this Fri­day to raise aware­ness of the con­di­tion.

Ollie and Amelia Car­roll, from Poyn­ton, have been di­ag­nosed with the Late In­fan­tile Bat­tens Dis­ease.

The rare ge­netic con­di­tion is de­gen­er­a­tive and there is no cure.

This Fri­day, June 5, is Bat­tens Dis­ease aware­ness day.

The fam­ily and sup­port­ers of Ollie, four, and Amelia, two, want ev­ery­one on so­cial me­dia to get in­volved by chang­ing their Face­book pro­files and shar­ing their sup­port.

Emma Scarf, the chil­dren’s aunt, said: “We want to help turn so­cial me­dia or­ange lead­ing up to Bat­tens Aware­ness day.

“It’s so easy to help raise aware­ness, just take a selfie with a sign and make it your pro­file pic or upload the art­work pro­vided by the BDFA, the char­ity sup­port­ing fam­i­lies with Bat­tens.

“You can also show your sup­port by wear­ing or­ange.

“There are so many peo­ple who have never heard of Bat­tens Dis­ease. You can be the one to tell them and help us raise aware­ness.”

Ollie and Amelia will lose their speech, mo­bil­ity and eye­sight as they get older and are un­likely to sur­vive past the age of 12.

Their par­ents Lucy and Mike have pledged to make ev­ery mo­ment count for their chil­dren and con­tinue their so­cial me­dia cam­paign ‘Ollie’s Army’ to raise aware­ness of the con­di­tion which af­fects only five or six chil­dren in the UK each year.

Their plight has seen a wave of sup­port from the com­mu­nity with thou­sands of pounds raised in their name to fund re­search into a cure.

Celebri­ties and top sports stars have also sup­ported the Ollie’s Army cam­paign by wear­ing spe­cial red or pink wrist bands.

●● Vol­un­teers have raised more than £2,000 with the fam­ily fun day at the Mul­berry Bush pub

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